Registry for patients with non-CF Bronchiectasis and NTM
Bronchiectasis and NTM Research Registry
This study is collecting information from patients with non-CF Bronchiectasis and NTM to help researchers learn more about these conditions and improve treatments.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 5000 (estimated) |
| Ages | 18 Years to 120 Years |
| Sex | All |
| Sponsor | COPD Foundation Academic / other |
| Locations | 1 site (Washington D.C., District of Columbia) |
| Trial ID | NCT01822834 on ClinicalTrials.gov |
What this trial studies
The Bronchiectasis Research Registry is a comprehensive database that collects information from patients diagnosed with non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) across various clinical institutions. Its primary aim is to facilitate collaborative research and aid in the design of multi-center clinical trials targeting these conditions. By consolidating patient data, the registry seeks to enhance understanding of the different types of Bronchiectasis and the underlying mechanisms of the disease. This initiative is a partnership with NTM Info and Research, Inc., and the COPD Foundation, focusing on improving patient outcomes through better research insights.
Who should consider this trial
Good fit: Ideal candidates for this registry are adults over the age of 18 who have been diagnosed with non-CF Bronchiectasis and Nontuberculosis Mycobacteria.
Not a fit: Patients under the age of 18 or those with cystic fibrosis Bronchiectasis will not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could lead to improved treatment options and better management strategies for patients with non-CF Bronchiectasis and NTM.
How similar studies have performed: Other studies focusing on registries for chronic lung diseases have shown success in improving patient care and guiding research, indicating that this approach is promising.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Over the age of 18 * non-CF Bronchiectasis * Nontuberculosis Mycobacteria (NTM) Exclusion Criteria: * Under the age of 18 * CF Bronchiectasis
Where this trial is running
Washington D.C., District of Columbia
- COPD Foundation — Washington D.C., District of Columbia, United States (Recruiting)
Study contacts
- Study coordinator: Delia Prieto
- Phone: 1-866-731-2673
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.