Registry for patients with non-CF Bronchiectasis and NTM
Official title: Bronchiectasis and NTM Research Registry
Run by COPD Foundation · NCT01822834 · Data updated 2026-11-12
This study is collecting information from patients with non-CF Bronchiectasis and NTM to help researchers learn more about these conditions and improve treatments.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years to 120 Years |
| Sex | All |
| Enrollment | 5000 (estimated) |
| Sponsor | COPD Foundation Academic / other |
| Locations | 1 site (Washington D.C., District of Columbia) |
| Status | Recruiting |
| Started | January 2008 |
| Main results expected | December 2050 |
| Study ends | December 2050 |
| Registry record updated | March 22, 2022 |
| Trial ID | NCT01822834 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this registry are adults over the age of 18 who have been diagnosed with non-CF Bronchiectasis and Nontuberculosis Mycobacteria.
✕Probably not a fit
Patients under the age of 18 or those with cystic fibrosis Bronchiectasis will not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The Bronchiectasis Research Registry is a comprehensive database that collects information from patients diagnosed with non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) across various clinical institutions. Its primary aim is to facilitate collaborative research and aid in the design of multi-center clinical trials targeting these conditions. By consolidating patient data, the registry seeks to enhance understanding of the different types of Bronchiectasis and the underlying mechanisms of the disease. This initiative is a partnership with NTM Info and Research, Inc., and the COPD Foundation, focusing on improving patient outcomes through better research insights.
Why it matters
Potential benefit: If successful, this registry could lead to improved treatment options and better management strategies for patients with non-CF Bronchiectasis and NTM.
How similar studies have gone: Other studies focusing on registries for chronic lung diseases have shown success in improving patient care and guiding research, indicating that this approach is promising.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Over the age of 18 * non-CF Bronchiectasis * Nontuberculosis Mycobacteria (NTM) Exclusion Criteria: * Under the age of 18 * CF Bronchiectasis
Where it's running
-
COPD Foundation
Washington D.C., District of Columbia, United States Recruiting
Study contacts
- Study coordinator: Delia Prieto
- Phone: 1-866-731-2673
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
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Investigating lung disease markers in cystic fibrosis and bronchiectasis patients
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This trial tests whether switching to a breath-enhanced nebulizer with similar COPD meds helps people who don’t get enough relief from their current handheld inhalers.
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A patient registry for COPD research
This study is gathering health information from over 75,000 people with COPD to help find better treatments and a cure for the disease.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.