Clinical trial Recruiting at 1 site Observational Ages 18 to 120

Registry for patients with non-CF Bronchiectasis and NTM

Official title: Bronchiectasis and NTM Research Registry

Run by COPD Foundation · NCT01822834 · Data updated 2026-11-12

This study is collecting information from patients with non-CF Bronchiectasis and NTM to help researchers learn more about these conditions and improve treatments.

Quick facts

Study typeObservational
Ages18 Years to 120 Years
SexAll
Enrollment5000 (estimated)
SponsorCOPD Foundation
Academic / other
Locations1 site (Washington D.C., District of Columbia)
StatusRecruiting
StartedJanuary 2008
Main results expectedDecember 2050
Study endsDecember 2050
Registry record updatedMarch 22, 2022
Trial IDNCT01822834 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this registry are adults over the age of 18 who have been diagnosed with non-CF Bronchiectasis and Nontuberculosis Mycobacteria.

Probably not a fit

Patients under the age of 18 or those with cystic fibrosis Bronchiectasis will not benefit from this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Bronchiectasis Research Registry is a comprehensive database that collects information from patients diagnosed with non-cystic fibrosis (non-CF) Bronchiectasis and Nontuberculosis Mycobacteria (NTM) across various clinical institutions. Its primary aim is to facilitate collaborative research and aid in the design of multi-center clinical trials targeting these conditions. By consolidating patient data, the registry seeks to enhance understanding of the different types of Bronchiectasis and the underlying mechanisms of the disease. This initiative is a partnership with NTM Info and Research, Inc., and the COPD Foundation, focusing on improving patient outcomes through better research insights.

Why it matters

Potential benefit: If successful, this registry could lead to improved treatment options and better management strategies for patients with non-CF Bronchiectasis and NTM.

How similar studies have gone: Other studies focusing on registries for chronic lung diseases have shown success in improving patient care and guiding research, indicating that this approach is promising.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Over the age of 18
* non-CF Bronchiectasis
* Nontuberculosis Mycobacteria (NTM)

Exclusion Criteria:

* Under the age of 18
* CF Bronchiectasis

Where it's running

  • COPD Foundation
    Washington D.C., District of Columbia, United States
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.