A patient registry for COPD research
COPD Patient-Powered Research Network
This study is gathering health information from over 75,000 people with COPD to help find better treatments and a cure for the disease.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 75000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | COPD Foundation Academic / other |
| Locations | 1 site (Washington D.C., District of Columbia) |
| Trial ID | NCT02803242 on ClinicalTrials.gov |
What this trial studies
The COPD Patient-Powered Research Network (COPD PPRN) aims to enroll over 75,000 patients with Chronic Obstructive Pulmonary Disease (COPD) and those at risk, allowing them to share their health information over several years. This observational study utilizes an online platform for volunteers to enroll, complete surveys, and be contacted about qualifying research studies. The primary goal is to accelerate research efforts to discover better treatments and ultimately find a cure for COPD.
Who should consider this trial
Good fit: Ideal candidates include individuals aged 18 and older with a COPD diagnosis, current or former smokers, those with a family history of respiratory disease, or individuals symptomatic of respiratory disease.
Not a fit: Patients who do not speak English may not benefit from this study due to language barriers.
Why it matters
Potential benefit: If successful, this initiative could lead to improved treatments and potentially a cure for COPD.
How similar studies have performed: Other studies utilizing patient-powered research networks have shown promise in advancing research and treatment options for chronic diseases.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * 18 years or older that says yes to one of the following: * COPD diagnosis * Current or former smoker * Family history of respiratory disease * Symptomatic of respiratory disease Exclusion Criteria: * Non-English speaking
Where this trial is running
Washington D.C., District of Columbia
- COPD Foundation — Washington D.C., District of Columbia, United States (Recruiting)
Study contacts
- Study coordinator: Gretchen M McCreary, MA
- Email: gmccreary@copdfoundation.org
- Phone: 866-731-2673
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.