Clinical trial Recruiting at 1 site Observational Ages 18 and up

A patient registry for COPD research

Official title: COPD Patient-Powered Research Network

Run by COPD Foundation · NCT02803242 · Data updated 2026-11-12

This study is gathering health information from over 75,000 people with COPD to help find better treatments and a cure for the disease.

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment75000 (estimated)
SponsorCOPD Foundation
Academic / other
Locations1 site (Washington D.C., District of Columbia)
StatusRecruiting
StartedAugust 2014
Main results expectedJanuary 2025
Study endsJanuary 2030
Registry record updatedMarch 10, 2022
Trial IDNCT02803242 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include individuals aged 18 and older with a COPD diagnosis, current or former smokers, those with a family history of respiratory disease, or individuals symptomatic of respiratory disease.

Probably not a fit

Patients who do not speak English may not benefit from this study due to language barriers.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The COPD Patient-Powered Research Network (COPD PPRN) aims to enroll over 75,000 patients with Chronic Obstructive Pulmonary Disease (COPD) and those at risk, allowing them to share their health information over several years. This observational study utilizes an online platform for volunteers to enroll, complete surveys, and be contacted about qualifying research studies. The primary goal is to accelerate research efforts to discover better treatments and ultimately find a cure for COPD.

Why it matters

Potential benefit: If successful, this initiative could lead to improved treatments and potentially a cure for COPD.

How similar studies have gone: Other studies utilizing patient-powered research networks have shown promise in advancing research and treatment options for chronic diseases.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* 18 years or older that says yes to one of the following:
* COPD diagnosis
* Current or former smoker
* Family history of respiratory disease
* Symptomatic of respiratory disease

Exclusion Criteria:

* Non-English speaking

Where it's running

  • COPD Foundation
    Washington D.C., District of Columbia, United States
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.