A patient registry for COPD research
Official title: COPD Patient-Powered Research Network
Run by COPD Foundation · NCT02803242 · Data updated 2026-11-12
This study is gathering health information from over 75,000 people with COPD to help find better treatments and a cure for the disease.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 75000 (estimated) |
| Sponsor | COPD Foundation Academic / other |
| Locations | 1 site (Washington D.C., District of Columbia) |
| Status | Recruiting |
| Started | August 2014 |
| Main results expected | January 2025 |
| Study ends | January 2030 |
| Registry record updated | March 10, 2022 |
| Trial ID | NCT02803242 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates include individuals aged 18 and older with a COPD diagnosis, current or former smokers, those with a family history of respiratory disease, or individuals symptomatic of respiratory disease.
✕Probably not a fit
Patients who do not speak English may not benefit from this study due to language barriers.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The COPD Patient-Powered Research Network (COPD PPRN) aims to enroll over 75,000 patients with Chronic Obstructive Pulmonary Disease (COPD) and those at risk, allowing them to share their health information over several years. This observational study utilizes an online platform for volunteers to enroll, complete surveys, and be contacted about qualifying research studies. The primary goal is to accelerate research efforts to discover better treatments and ultimately find a cure for COPD.
Why it matters
Potential benefit: If successful, this initiative could lead to improved treatments and potentially a cure for COPD.
How similar studies have gone: Other studies utilizing patient-powered research networks have shown promise in advancing research and treatment options for chronic diseases.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * 18 years or older that says yes to one of the following: * COPD diagnosis * Current or former smoker * Family history of respiratory disease * Symptomatic of respiratory disease Exclusion Criteria: * Non-English speaking
Where it's running
-
COPD Foundation
Washington D.C., District of Columbia, United States Recruiting
Study contacts
- Study coordinator: Gretchen M McCreary, MA
- Email: gmccreary@copdfoundation.org
- Phone: 866-731-2673
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.