Registry for new cases of multiple sclerosis in Lorraine
Official title: Lorraine Registry of Multiple Sclerosis
Run by Central Hospital, Nancy, France · NCT02883335 · Data updated 2026-11-12
This study is creating a detailed record of all new multiple sclerosis cases in the Lorraine region of France to better understand the condition and its impact on patients.
Quick facts
| Study type | Observational |
|---|---|
| Sex | All |
| Enrollment | 6000 (estimated) |
| Sponsor | Central Hospital, Nancy, France Academic / other |
| Locations | 1 site (Nancy) |
| Status | Recruiting |
| Started | May 2003 |
| Main results expected | January 2030 |
| Study ends | January 2030 |
| Registry record updated | February 8, 2023 |
| Trial ID | NCT02883335 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this registry are individuals with a confirmed diagnosis of multiple sclerosis who reside in the Lorraine region.
✕Probably not a fit
Patients who do not have a confirmed diagnosis of multiple sclerosis or who refuse to be registered will not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The Lorraine Registry of Multiple Sclerosis aims to comprehensively document every new case of multiple sclerosis (MS) occurring in the Lorraine region of France and to follow these cases indefinitely. The registry collects data from various sources, including neurologists, patient networks, and health insurance data, ensuring thoroughness and accuracy. Each identified case is confirmed by neurologists, and the registry employs both automated and manual checks to maintain data integrity. Regular audits and reports on the incidence and prevalence of MS in Lorraine are conducted to evaluate the quality of the data collected.
Why it matters
Potential benefit: If successful, this registry could provide valuable insights into the epidemiology and progression of multiple sclerosis, potentially leading to improved patient care and treatment strategies.
How similar studies have gone: Other patient registries for multiple sclerosis have shown success in improving understanding and management of the disease, indicating that this approach is both valuable and tested.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Having a confirmed multiple sclerosis diagnosis * Living in Lorraine (French region) Exclusion Criteria: * Refusal to be registered
Where it's running
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CIC 1433 Épidémiologie clinique, Inserm, Université de Lorraine, CHRU de Nancy
Nancy, France Recruiting
Study contacts
- Principal investigator: Francis Guillemin, MD, PHD — CHRU Nancy
- Study coordinator: Francis Guillemin, MD, PHD
- Email: francis.guillemin@chru-nancy.fr
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.