Registry for new cases of multiple sclerosis in Lorraine
Lorraine Registry of Multiple Sclerosis
This study is creating a detailed record of all new multiple sclerosis cases in the Lorraine region of France to better understand the condition and its impact on patients.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 6000 (estimated) |
| Sex | All |
| Sponsor | Central Hospital, Nancy, France Academic / other |
| Locations | 1 site (Nancy) |
| Trial ID | NCT02883335 on ClinicalTrials.gov |
What this trial studies
The Lorraine Registry of Multiple Sclerosis aims to comprehensively document every new case of multiple sclerosis (MS) occurring in the Lorraine region of France and to follow these cases indefinitely. The registry collects data from various sources, including neurologists, patient networks, and health insurance data, ensuring thoroughness and accuracy. Each identified case is confirmed by neurologists, and the registry employs both automated and manual checks to maintain data integrity. Regular audits and reports on the incidence and prevalence of MS in Lorraine are conducted to evaluate the quality of the data collected.
Who should consider this trial
Good fit: Ideal candidates for this registry are individuals with a confirmed diagnosis of multiple sclerosis who reside in the Lorraine region.
Not a fit: Patients who do not have a confirmed diagnosis of multiple sclerosis or who refuse to be registered will not benefit from this study.
Why it matters
Potential benefit: If successful, this registry could provide valuable insights into the epidemiology and progression of multiple sclerosis, potentially leading to improved patient care and treatment strategies.
How similar studies have performed: Other patient registries for multiple sclerosis have shown success in improving understanding and management of the disease, indicating that this approach is both valuable and tested.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Having a confirmed multiple sclerosis diagnosis * Living in Lorraine (French region) Exclusion Criteria: * Refusal to be registered
Where this trial is running
Nancy
- CIC 1433 Épidémiologie clinique, Inserm, Université de Lorraine, CHRU de Nancy — Nancy, France (Recruiting)
Study contacts
- Principal investigator: Francis Guillemin, MD, PHD — CHRU Nancy
- Study coordinator: Francis Guillemin, MD, PHD
- Email: francis.guillemin@chru-nancy.fr
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.