Registry for childhood and young adult cancer patients

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study aims to establish a registry for patients diagnosed with cancer at age 40 or younger, focusing on those treated during adolescence and young adulthood. Participants will undergo various assessments, including physical and cognitive evaluations, health-related quality of life questionnaires, and body composition measurements. Additionally, biospecimens will be collected for biobanking to support ongoing cancer outcomes research. The registry will track participants from diagnosis through treatment and into survivorship to better understand their long-term health outcomes.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Patient ages 0-39 years at the time of cancer diagnosis (ages 1-39 years at enrollment) who are at any point in treatment and survivorship trajectory
* English or Spanish speaking

Exclusion Criteria:

* Unwilling to sign informed consent
* Speak a language other than English or Spanish.

Where it's running

• University of North Carolina at Chapel Hill
  Chapel Hill, North Carolina, United States Recruiting

Study contacts

• Principal investigator: Andrew Smitherman, MD — University of North Carolina, Chapel Hill
• Study coordinator: Andrew Smitherman, MD
• Email: andrew_smitherman@med.unc.edu
• Phone: 919-966-1178

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.