Prevalence and features of neuropathy in people with Waldenström's macroglobulinemia

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This is a cross-sectional observational project of a cohort of Waldenström's macroglobulinemia (WM) patients followed at Rigshospitalet. All identified WM patients were screened with a neuropathy questionnaire and those with probable symptoms will receive a neurological exam and nerve conduction study (ENG). Patients with WM-associated neuropathy will have blood tests including candidate biomarkers (for example neurofilament light chain) and lumbar puncture where indicated, with clinical classification of neuropathy subtypes. The cohort will be followed for three years to document clinical course and correlate paraclinical findings with outcomes.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Diagnosis of Waldenström's Macroglobulinemia with symptoms of peripheral neuropathy for further clinical investigation.

Exclusion Criteria:

* Investigated with no sign of peripheral neuropathy

Where it's running

• Copenhagen Neuromuscular Center, Rigshospitalet Blegdamsvej.
  København Ø, Denmark Recruiting

Study contacts

• Study coordinator: Morten Müller Aagaard, Medical Doctor
• Email: morten.mueller.aagaard.01@regionh.dk
• Phone: +4521671835

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.