Parkinson's Disease Participant Recruitment Registry
University of Delaware Participant Recruitment Registry for Parkinson's Disease Research
This study is creating a registry to help find people with Parkinson's disease who want to participate in future research to improve understanding and treatment of the condition.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1000 (estimated) |
| Ages | 21 Years to 100 Years |
| Sex | All |
| Sponsor | University of Delaware Academic / other |
| Locations | 1 site (Newark, Delaware) |
| Trial ID | NCT04496973 on ClinicalTrials.gov |
What this trial studies
This registry aims to facilitate the recruitment of individuals diagnosed with Parkinson's disease for future research studies at the University of Delaware. By collecting contact and basic health information from participants, the registry will streamline the process of enrolling individuals in various studies focused on understanding Parkinson's disease and its effects. The initiative addresses the urgent need for research participants to advance knowledge and treatment options for this condition.
Who should consider this trial
Good fit: Ideal candidates for this registry are individuals aged 21 and older with a clinical diagnosis of Parkinson's disease who are interested in participating in research studies.
Not a fit: Patients with atypical parkinsonian syndromes or those diagnosed with dementia may not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could significantly enhance the pace and effectiveness of Parkinson's disease research, ultimately leading to improved treatments and outcomes for patients.
How similar studies have performed: While registries for participant recruitment are common, the success of this specific approach at the University of Delaware is yet to be established.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Individual 21 years old or older * A clinical diagnosis of Parkinson's disease * Interest in participating in one or more investigator-led research studies at the University of Delaware Exclusion Criteria: * Individuals with a clinical diagnosis of parkinsonism that is not considered primary (e.g. vascular parkinsonism) or an atypical parkinsonian syndrome (e.g., progressive supranuclear palsy, multiple system atrophy, corticobasal degeneration etc.) * Clinical diagnosis of dementia
Where this trial is running
Newark, Delaware
- University of Delaware — Newark, Delaware, United States (Recruiting)
Study contacts
- Study coordinator: Roxana Burciu, PhD
- Email: rgburciu@udel.edu
- Phone: 302-831-3066
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.