Online registry to understand cancer experiences for patients and caregivers
Cancer Experience Registry: An Online Survey Research Study to Understand the Experiences of Cancer Patients and Caregivers
This study is trying to learn more about the experiences and needs of cancer patients and their caregivers by collecting their feedback through an online survey.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 15000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Cancer Support Community, Research and Training Institute, Philadelphia Academic / other |
| Locations | 1 site (Washington D.C., District of Columbia) |
| Trial ID | NCT02333604 on ClinicalTrials.gov |
What this trial studies
The Cancer Experience Registry is an online platform designed to gather information through surveys from individuals impacted by cancer, including patients and their caregivers. It aims to explore the psychosocial needs and experiences related to cancer diagnoses, focusing on emotional, social, physical, and financial aspects. By collecting this data, the registry seeks to inform healthcare providers and policymakers about gaps in care and develop tailored programs to improve the quality of life for those affected by cancer. The findings will also be shared to enhance care and support services.
Who should consider this trial
Good fit: Ideal candidates include individuals who have received a cancer diagnosis or are caregivers for someone diagnosed with cancer.
Not a fit: Patients who do not have a cancer diagnosis or are not involved in caregiving may not benefit from this study.
Why it matters
Potential benefit: If successful, this registry could lead to improved support programs and resources for cancer patients and their caregivers.
How similar studies have performed: Other studies focusing on patient experiences and psychosocial needs in cancer care have shown success in informing better support services.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion criteria: * Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer * Live in United States, a US territory, or Canada * Able to read and understand English Exclusion criteria: * None
Where this trial is running
Washington D.C., District of Columbia
- Cancer Support Community Research & Training Institute — Washington D.C., District of Columbia, United States (Recruiting)
Study contacts
- Principal investigator: Erica E. Fortune, PhD — Cancer Support Community
- Study coordinator: Erica E. Fortune, PhD
- Email: efortune@cancersupportcommunity.org
- Phone: 202.659.9709
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.