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Clinical trial Recruiting at 1 site Observational Ages 18 and up

Online registry to understand cancer experiences for patients and caregivers

Official title: Cancer Experience Registry: An Online Survey Research Study to Understand the Experiences of Cancer Patients and Caregivers

Run by Cancer Support Community, Research and Training Institute, Philadelphia · NCT02333604 · Data updated 2026-11-12

This study is trying to learn more about the experiences and needs of cancer patients and their caregivers by collecting their feedback through an online survey.

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Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment15000 (estimated)
SponsorCancer Support Community, Research and Training Institute, Philadelphia
Academic / other
Locations1 site (Washington D.C., District of Columbia)
StatusRecruiting
StartedMarch 2013
Main results expectedJanuary 2035
Study endsDecember 2035
Registry record updatedOctober 29, 2026
Trial IDNCT02333604 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include individuals who have received a cancer diagnosis or are caregivers for someone diagnosed with cancer.

Probably not a fit

Patients who do not have a cancer diagnosis or are not involved in caregiving may not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Cancer Experience Registry is an online platform designed to gather information through surveys from individuals impacted by cancer, including patients and their caregivers. It aims to explore the psychosocial needs and experiences related to cancer diagnoses, focusing on emotional, social, physical, and financial aspects. By collecting this data, the registry seeks to inform healthcare providers and policymakers about gaps in care and develop tailored programs to improve the quality of life for those affected by cancer. The findings will also be shared to enhance care and support services.

Why it matters

Potential benefit: If successful, this registry could lead to improved support programs and resources for cancer patients and their caregivers.

How similar studies have gone: Other studies focusing on patient experiences and psychosocial needs in cancer care have shown success in informing better support services.

Who can join: the full rules

Show full inclusion / exclusion criteria 
Inclusion criteria:

* Have received a cancer diagnosis or have been a family caregiver or informal caregiver (i.e., a relative or friend) for someone diagnosed with cancer
* Live in United States, a US territory, or Canada
* Able to read and understand English

Exclusion criteria:

* None

Where it's running

  • Cancer Support Community Research & Training Institute
    Washington D.C., District of Columbia, United States     Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
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Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.