Clinical trial Recruiting at 2 sites Observational Ages 18 and up

Observational study on bone and soft tissue sarcoma in the Netherlands

Official title: Registration Study on Bone and Soft Tissue Sarcoma - An Observational Cohort Study -

Run by Radboud University Medical Center · NCT05373810 · Data updated 2026-11-12

This study is collecting health information and experiences from people in the Netherlands who have bone or soft tissue sarcoma to help improve their treatment and care.

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment1000 (estimated)
SponsorRadboud University Medical Center
Academic / other
Locations2 sites (Arnhem and 1 other locations)
StatusRecruiting
StartedJuly 29, 2019
Main results expectedApril 2, 2029
Study endsApril 2, 2029
Registry record updatedMay 23, 2022
Trial IDNCT05373810 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this study are individuals with histologically proven bone or soft tissue sarcoma who are currently being treated or planned for treatment.

Probably not a fit

Patients with altered mental status that prevents them from understanding and providing informed consent will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational cohort study aims to collect both prospective and retrospective clinical data and patient-reported outcomes from individuals diagnosed with bone or soft tissue sarcoma in the Netherlands. The study will gather comprehensive information on medical history, treatment plans, outcomes, and quality of life from patients at various stages of their diagnosis and treatment. By analyzing this data, the study seeks to enhance understanding and improve treatment care for sarcoma patients. It will also serve as a foundation for future research in prognostic and predictive studies, as well as health care policy evaluations.

Why it matters

Potential benefit: If successful, this study could lead to improved treatment strategies and better quality of life for patients with bone and soft tissue sarcoma.

How similar studies have gone: Other observational studies in similar contexts have shown success in improving treatment outcomes and understanding of sarcoma, indicating that this approach is both relevant and potentially impactful.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Histologically proven bone or soft tissue sarcoma, excluding Gastrointestinal Stromal Tumours

Exclusion Criteria:

* Altered mental status that would prohibit the understanding of and giving of informed consent

Where it's running

  • Radiotherapiegroep
    Arnhem, Netherlands
    Recruiting
  • Radboudumc
    Nijmegen, Netherlands
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.