National Registry for Patients with Parkinsonian Disorders in China
The National Registry Study For the Real-world Patients With Parkinsonian Disorders in China (ForPDCN)
This study is creating a registry using a mobile app to collect health information from people with Parkinsonian disorders in China to help improve understanding and communication about their condition.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 100000 (estimated) |
| Sex | All |
| Sponsor | Huashan Hospital Academic / other |
| Locations | 2 sites (Shanghai, Shanghai Municipality and 1 other locations) |
| Trial ID | NCT03649503 on ClinicalTrials.gov |
What this trial studies
This project aims to create a comprehensive registry for individuals with Parkinsonian disorders in China, utilizing a mobile application called PaWei for data collection. Participants will provide demographic information, health history, and undergo various assessments through self-reported online questionnaires. The study will monitor participants longitudinally, collecting data every three months to better understand the condition and its impact on patients' lives. The registry will facilitate communication between patients, doctors, and researchers, enhancing the understanding of Parkinsonian disorders.
Who should consider this trial
Good fit: Ideal candidates for this study are individuals diagnosed with Parkinsonian disorders.
Not a fit: Patients without Parkinsonian disorders or those who are unable to use the PaWei app may not benefit from this study.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and management of Parkinsonian disorders, ultimately benefiting patients through better-targeted treatments.
How similar studies have performed: Other studies utilizing patient registries and mobile health applications have shown success in improving patient outcomes and data collection, indicating a promising approach.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: Anyone with Parkinsonian Disorders is welcome to join the Registry. Exclusion Criteria:
Where this trial is running
Shanghai, Shanghai Municipality and 1 other locations
- Huashan Hospital Affiliated to Fudan University — Shanghai, Shanghai Municipality, China (Recruiting)
- Huashan Hospital — Shanghai, Shanghai Municipality, China (Recruiting)
Study contacts
- Study coordinator: Jian Wang, MD
- Email: wangjian336@hotmail.com
- Phone: 86-21-52888160
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.