National Registry for Patients with Parkinsonian Disorders in China
Official title: The National Registry Study For the Real-world Patients With Parkinsonian Disorders in China (ForPDCN)
Run by Huashan Hospital · NCT03649503 · Data updated 2026-11-12
This study is creating a registry using a mobile app to collect health information from people with Parkinsonian disorders in China to help improve understanding and communication about their condition.
Quick facts
| Study type | Observational |
|---|---|
| Sex | All |
| Enrollment | 100000 (estimated) |
| Sponsor | Huashan Hospital Academic / other |
| Locations | 2 sites (Shanghai, Shanghai Municipality and 1 other locations) |
| Status | Recruiting |
| Started | October 1, 2018 |
| Main results expected | September 30, 2028 |
| Study ends | September 30, 2033 |
| Registry record updated | October 2, 2025 |
| Trial ID | NCT03649503 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are individuals diagnosed with Parkinsonian disorders.
✕Probably not a fit
Patients without Parkinsonian disorders or those who are unable to use the PaWei app may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This project aims to create a comprehensive registry for individuals with Parkinsonian disorders in China, utilizing a mobile application called PaWei for data collection. Participants will provide demographic information, health history, and undergo various assessments through self-reported online questionnaires. The study will monitor participants longitudinally, collecting data every three months to better understand the condition and its impact on patients' lives. The registry will facilitate communication between patients, doctors, and researchers, enhancing the understanding of Parkinsonian disorders.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and management of Parkinsonian disorders, ultimately benefiting patients through better-targeted treatments.
How similar studies have gone: Other studies utilizing patient registries and mobile health applications have shown success in improving patient outcomes and data collection, indicating a promising approach.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: Anyone with Parkinsonian Disorders is welcome to join the Registry. Exclusion Criteria:
Where it's running
-
Huashan Hospital Affiliated to Fudan University
Shanghai, Shanghai Municipality, China Recruiting -
Huashan Hospital
Shanghai, Shanghai Municipality, China Recruiting
Study contacts
- Study coordinator: Jian Wang, MD
- Email: wangjian336@hotmail.com
- Phone: 86-21-52888160
Similar studies
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.