My Care My Voice: helping patients and clinicians start palliative care conversations

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

My Care My Voice implements videos, leaflets, and workflow supports to prompt palliative care conversations between clinicians and adults with advanced cancer. The project is interventional and multi-center, with a preparatory feasibility phase plus combined effect and process evaluations to measure changes in clinician intention and behavior and the quality of implementation. Participants include oncologists, other clinicians, implementer staff, and adult patients with non-curable cancer at three hospitals in East Flanders, Belgium. Data collection uses surveys, interviews, and observations to assess acceptability, feasibility, and how the materials can be integrated into routine care.

Why it matters

Who can join: the full rules

Inclusion Criteria (physician):

* Oncologist (medical oncologist, radiation oncologist, etc.), radiologist, organ specialist, nuclear medicine physician, ASO
* The physician regularly interacts with people with advanced cancer
* The physician is employed in an oncology hospital department

Exclusion Criteria (physician):

* The physician works mostly (\>50% of the time) in a hospital not involved in this study

Inclusion Criteria (healthcare provider - potential implementer):

* Healthcare provider (e.g., study coordinator, oncology coach) or another hospital staff member (e.g., administrative staff)
* The implementer regularly interacts with people with advanced cancer

Exclusion criteria (healthcare provider - potential implementer):

\- Physician participating in My Care, My Voice

Inclusion Criteria (patient):

* The participant is an adult (18 years or older)
* The participant has been diagnosed with advanced (i.e., non-curable) cancer (no curative treatment ongoing or planned). Participants receiving life-prolonging treatment are included.
* The participant is aware of their diagnosis and treatment options as determined by their physician
* The participant has known their initial diagnosis for more than one month
* The participant is able to participate in a Dutch-language study
* The participant is competent and able to voluntarily consent to participate in this study
* The participant is hospitalized or receiving outpatient care

Exclusion Criteria (patient):

* Estimated survival prognosis by the physician is longer than 5 years
* The participant is in a follow-up trajectory or in remission according to the physician
* The participant is already receiving specialized palliative care known to the treating physician

Where it's running

• AZorg
  Aalst, East-Flanders, Belgium Recruiting
• AZ Maria Middelares
  Ghent, East-Flanders, Belgium Recruiting
• Ghent University Hospital
  Ghent, East-Flanders, Belgium Recruiting
• AZ Groeninge
  Kortrijk, West-Flanders, Belgium Recruiting

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.