Lived Experience Narratives in Dementia
Official title: Improving the Quality of Life for People Living With Dementia and Carers: The Design and Development of a Dementia Specific Online Narrative-Based Intervention With a Feasibility Study
Run by University of Nottingham · NCT07757178 · Data updated 2026-11-12
This project tests a digital Online LEND Intervention that shares dementia patients’ and caregivers’ lived experiences to see if it helps wellbeing and connection.
Quick facts
| Study type | Interventional |
|---|---|
| Ages | 18 Years to 99 Years |
| Sex | All |
| Enrollment | 60 (estimated) |
| Sponsor | University of Nottingham Academic / other |
| Locations | 2 sites (Nottingham, England and 1 other locations) |
| Status | Recruiting |
| Started | November 17, 2025 |
| Main results expected | March 2029 |
| Study ends | July 2029 |
| Registry record updated | August 11, 2026 |
| Trial ID | NCT07757178 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Adults 18 or older living with dementia or caring for someone with dementia, able to consent and engage with the digital intervention in the study language.
✕Probably not a fit
Individuals unable to provide informed consent or lacking capacity, or those not using or benefiting from digital health resources, may not experience benefit.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The LEND programme is designing and evaluating a digital intervention that delivers personalised narratives from people living with dementia and their caregivers. It includes theory development, intervention design, and a feasibility two-arm randomised component focused on usability, acceptability, and outcome measures, with long-term qualitative follow-up. The work aims to recruit diverse groups, explore engagement, and determine whether a future full-scale trial is feasible within NHS memory services and community settings.
Why it matters
Potential benefit: If successful, participants may experience improved wellbeing, greater self-efficacy, and emotional support through relatable dementia narratives.
How similar studies have gone: Previous work in narrative-based digital interventions has shown promise, but LEND’s focus on lived-experience narratives and diverse populations is relatively novel.
Who can join: the full rules
Show full inclusion / exclusion criteria
General Inclusion Criteria (apply across WP1-WP3) * Adults aged 18+. * Able to give informed consent and participate meaningfully in the required tasks. * Adequate communication ability in the required study language General Exclusion Criteria (apply across WP1-3) * Living in a hospital or healthcare institution at the time of the study. * Refusal or inability to provide informed consent, or lack of capacity to consent. * Inability to comprehend participant information or communicate meaningfully
Where it's running
-
Mental Health & Clinical Neurosciences, Institute of Mental Health
Nottingham, England, United Kingdom Recruiting -
Nottinghamshire Healthcare NHS Foundation , Highbury Hospital
Nottingham, United Kingdom Recruiting
Study contacts
- Study coordinator: Linda E O'Raw, PhD
- Email: linda.o'raw@nottingham.ac.uk
- Phone: 07791598280
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.