Identifying factors that improve quality of life in Parkinson's disease
Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]
Bastyr University · NCT02194816
This study is trying to find out what lifestyle choices and habits can help people with Parkinson's disease feel better and improve their quality of life.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 2000 (estimated) |
| Ages | 19 Years and up |
| Sex | All |
| Sponsor | Bastyr University (other) |
| Locations | 1 site (Kenmore, Washington) |
| Trial ID | NCT02194816 on ClinicalTrials.gov |
What this trial studies
This observational study aims to identify factors associated with improved quality of life and reduced symptoms in individuals with Parkinson's disease and related conditions. Participants will complete online surveys every six months for five years, providing information about their health, dietary habits, and lifestyle practices. The goal is to describe medication, diet, and lifestyle patterns linked to high quality of life and minimal disease progression. The study will not provide direct care but seeks to gather valuable data for future assessments of complementary and integrative practices.
Who should consider this trial
Good fit: Ideal candidates include individuals diagnosed with Parkinson's disease, Parkinsonism, or related syndromes who are willing to participate in long-term online surveys.
Not a fit: Patients who are unable or unwilling to complete the required surveys every six months may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could help identify lifestyle and dietary factors that contribute to better management of Parkinson's disease symptoms.
How similar studies have performed: While similar studies have explored lifestyle factors in Parkinson's disease, this specific approach focusing on modifiable variables is relatively novel.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Parkinson's disease (PD) * Parkinsonism * Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies) * Must have online access, an email address, basic computer literacy * Must be willing to complete online surveys every 6 months for 5 years Exclusion Criteria: * Inability to read/write English * Inability or unwillingness to complete surveys every six (6) months (\~90 min)
Where this trial is running
Kenmore, Washington
- Bastyr University — Kenmore, Washington, United States (RECRUITING)
Study contacts
- Principal investigator: Laurie K Mischley, ND, PhD, MPH — Bastyr University
- Study coordinator: Research Assistant
- Email: neuroresearch@bastyr.edu
- Phone: 425-602-3306
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Parkinson's Disease, Parkinsonism, MSA - Multiple System Atrophy, Progressive Supranuclear Palsy, Shy-Drager Syndrome, Corticobasal Degeneration, Dementia With Lewy Bodies, Pick Disease