Identifying factors that improve quality of life in Parkinson's disease
Official title: Modifiable Variables in Parkinsonism (MVP) [Formerly CAM Care in PD]
Run by Bastyr University · NCT02194816 · Data updated 2026-11-12
This study is trying to find out what lifestyle choices and habits can help people with Parkinson's disease feel better and improve their quality of life.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 19 Years and up |
| Sex | All |
| Enrollment | 2000 (estimated) |
| Sponsor | Bastyr University Academic / other |
| Locations | 1 site (Kenmore, Washington) |
| Status | Recruiting |
| Started | September 2012 |
| Main results expected | December 2030 |
| Study ends | December 2030 |
| Registry record updated | March 25, 2022 |
| Trial ID | NCT02194816 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates include individuals diagnosed with Parkinson's disease, Parkinsonism, or related syndromes who are willing to participate in long-term online surveys.
✕Probably not a fit
Patients who are unable or unwilling to complete the required surveys every six months may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study aims to identify factors associated with improved quality of life and reduced symptoms in individuals with Parkinson's disease and related conditions. Participants will complete online surveys every six months for five years, providing information about their health, dietary habits, and lifestyle practices. The goal is to describe medication, diet, and lifestyle patterns linked to high quality of life and minimal disease progression. The study will not provide direct care but seeks to gather valuable data for future assessments of complementary and integrative practices.
Why it matters
Potential benefit: If successful, this study could help identify lifestyle and dietary factors that contribute to better management of Parkinson's disease symptoms.
How similar studies have gone: While similar studies have explored lifestyle factors in Parkinson's disease, this specific approach focusing on modifiable variables is relatively novel.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Parkinson's disease (PD) * Parkinsonism * Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies) * Must have online access, an email address, basic computer literacy * Must be willing to complete online surveys every 6 months for 5 years Exclusion Criteria: * Inability to read/write English * Inability or unwillingness to complete surveys every six (6) months (\~90 min)
Where it's running
-
Bastyr University
Kenmore, Washington, United States Recruiting
Study contacts
- Principal investigator: Laurie K Mischley, ND, PhD, MPH — Bastyr University
- Study coordinator: Research Assistant
- Email: neuroresearch@bastyr.edu
- Phone: 425-602-3306
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.