How Ehlers-Danlos Syndrome Affects Gynaecological Health

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study compares the severity of menstrual pain and the prevalence of gynecologic conditions between women with EDS and a control group. Participants will complete an online questionnaire to report symptoms, medical history, and reproductive health experiences. The aim is to better characterise how EDS may influence menstrual pain, bleeding, and related conditions. The study is led by University Hospital, Rouen, and uses an online, voluntary participation approach.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Women aged 18 or over.
* Willing to participate voluntarily in the study via an online questionnaire.
* Of childbearing age.
* Reporting a diagnosis of EDS (all types) or not having EDS (control group) and being part of a database of healthy volunteers.

Exclusion Criteria:

* Minors (\< 18 years old).
* Menopausal women
* People who do not understand French well enough to complete the questionnaire.
* Uncertain diagnosis of EDS (exclusion of participants who suspect EDS but without medical confirmation).

Where it's running

• CHU de ROUEN
  Rouen, France Recruiting

Study contacts

• Study coordinator: Mathilde ML LECOINTRE, Doctor
• Email: melodie.lecointre@chu-rouen.fr
• Phone: 02 32 88 07 89

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.