Clinical trial Recruiting at 1 site Observational

Global data collection for understanding pulmonary hypertension

Official title: PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

Run by University of Giessen · NCT05329714 · Data updated 2026-11-12

This study collects and analyzes patient data from around the world to better understand pulmonary hypertension and improve treatment options for those living with it.

Quick facts

Study typeObservational
SexAll
Enrollment40000 (estimated)
SponsorUniversity of Giessen
Academic / other
Locations1 site (Giessen, Hesse)
StatusRecruiting
StartedJanuary 30, 2020
Main results expectedJanuary 30, 2050
Study endsJanuary 30, 2055
Registry record updatedApril 4, 2025
Trial IDNCT05329714 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this study are individuals with a clinical diagnosis of pulmonary hypertension.

Probably not a fit

Patients without a diagnosis of pulmonary hypertension will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

PVRI-GoDeep is a meta-registry that compiles anonymized patient data related to pulmonary hypertension (PH) from various local registries worldwide. Operated by the Pulmonary Vascular Research Institute and the University of Giessen, this initiative aims to enhance the understanding of PH through deep phenotyping and global outreach. By analyzing geographical and ethnic profiles, the registry seeks to improve individualized treatment strategies for PH patients and support scientific research in this field.

Why it matters

Potential benefit: If successful, this initiative could lead to more personalized and effective treatment strategies for patients with pulmonary hypertension.

How similar studies have gone: Other studies utilizing similar data integration and deep phenotyping approaches have shown promise in enhancing understanding and treatment of complex diseases.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Clinical Diagnosis of Pulmonary Hypertension

Exclusion Criteria:

* none

Where it's running

  • University Giessen PH Center
    Giessen, Hesse, Germany
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.