Global data collection for understanding pulmonary hypertension
Official title: PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
Run by University of Giessen · NCT05329714 · Data updated 2026-11-12
This study collects and analyzes patient data from around the world to better understand pulmonary hypertension and improve treatment options for those living with it.
Quick facts
| Study type | Observational |
|---|---|
| Sex | All |
| Enrollment | 40000 (estimated) |
| Sponsor | University of Giessen Academic / other |
| Locations | 1 site (Giessen, Hesse) |
| Status | Recruiting |
| Started | January 30, 2020 |
| Main results expected | January 30, 2050 |
| Study ends | January 30, 2055 |
| Registry record updated | April 4, 2025 |
| Trial ID | NCT05329714 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are individuals with a clinical diagnosis of pulmonary hypertension.
✕Probably not a fit
Patients without a diagnosis of pulmonary hypertension will not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
PVRI-GoDeep is a meta-registry that compiles anonymized patient data related to pulmonary hypertension (PH) from various local registries worldwide. Operated by the Pulmonary Vascular Research Institute and the University of Giessen, this initiative aims to enhance the understanding of PH through deep phenotyping and global outreach. By analyzing geographical and ethnic profiles, the registry seeks to improve individualized treatment strategies for PH patients and support scientific research in this field.
Why it matters
Potential benefit: If successful, this initiative could lead to more personalized and effective treatment strategies for patients with pulmonary hypertension.
How similar studies have gone: Other studies utilizing similar data integration and deep phenotyping approaches have shown promise in enhancing understanding and treatment of complex diseases.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Clinical Diagnosis of Pulmonary Hypertension Exclusion Criteria: * none
Where it's running
-
University Giessen PH Center
Giessen, Hesse, Germany Recruiting
Study contacts
- Study coordinator: Raphael W Majeed
- Email: raphael.majeed@innere.med.uni-giessen.de
- Phone: +49 641 985 42502
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.