Global data collection for understanding pulmonary hypertension
PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
This study collects and analyzes patient data from around the world to better understand pulmonary hypertension and improve treatment options for those living with it.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 40000 (estimated) |
| Sex | All |
| Sponsor | University of Giessen Academic / other |
| Locations | 1 site (Giessen, Hesse) |
| Trial ID | NCT05329714 on ClinicalTrials.gov |
What this trial studies
PVRI-GoDeep is a meta-registry that compiles anonymized patient data related to pulmonary hypertension (PH) from various local registries worldwide. Operated by the Pulmonary Vascular Research Institute and the University of Giessen, this initiative aims to enhance the understanding of PH through deep phenotyping and global outreach. By analyzing geographical and ethnic profiles, the registry seeks to improve individualized treatment strategies for PH patients and support scientific research in this field.
Who should consider this trial
Good fit: Ideal candidates for this study are individuals with a clinical diagnosis of pulmonary hypertension.
Not a fit: Patients without a diagnosis of pulmonary hypertension will not benefit from this study.
Why it matters
Potential benefit: If successful, this initiative could lead to more personalized and effective treatment strategies for patients with pulmonary hypertension.
How similar studies have performed: Other studies utilizing similar data integration and deep phenotyping approaches have shown promise in enhancing understanding and treatment of complex diseases.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Clinical Diagnosis of Pulmonary Hypertension Exclusion Criteria: * none
Where this trial is running
Giessen, Hesse
- University Giessen PH Center — Giessen, Hesse, Germany (Recruiting)
Study contacts
- Study coordinator: Raphael W Majeed
- Email: raphael.majeed@innere.med.uni-giessen.de
- Phone: +49 641 985 42502
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.