GIST Patient Registry for real-world insights

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Life Raft Group GIST registry is an observational database that gathers medical information from individuals diagnosed with GIST and related cancers. It aims to improve understanding of disease patterns, outcomes, and potential links to treatments or molecular targets. Data may come from medical records, surveys, and a linked tissue bank, with separate consent required for tissue samples. Participation involves providing consent and sharing information; joining the registry does not require involvement in other LRG activities. The registry facilitates research by aggregating real-world experiences to support future studies and patient care improvements.

Why it matters

Who can join: the full rules

Inclusion Criteria:

1. Gastrointestinal Stromal Tumor diagnosis
2. Provide written and informed consent

Exclusion Criteria:

\-

Where it's running

• The Life Raft Group
  Wayne, New Jersey, United States Recruiting

Study contacts

• Study coordinator: Patient Registry Department
• Email: patientregistrydepartment@liferaftgroup.org
• Phone: 973-837-9092

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• KQB198 plus imatinib for first-line advanced or metastatic GIST

  This Phase 2 test will see if adding the experimental drug KQB198 to imatinib helps people with advanced or metastatic GIST who are starting first-line treatment.

  Recruiting at 17 sites Phase 2 Kumquat Biosciences Inc. · Los Angeles, California and 16 other locations · NCT07406633

• ctDNA-guided precision care for lung, GIST, colorectal, biliary, and ovarian cancers

  This trial tests a blood test that looks for tumor DNA in patients with several cancers to help guide personalized treatment decisions.

  Recruiting Royal Marsden NHS Foundation Trust · London · NCT07673861

• Two-tooth endoscopic clip to help remove and close stomach GISTs

  Doctors will try a new two-tooth endoscopic clip used with a clip-and-line traction method during ESD and EFTR to see if it makes removing and closing gastric GISTs (2–5 cm) faster and safer for adults.

  Recruiting Affiliated Hospital to Academy of Military Medical Sciences · Beijing · NCT07581977

• Regorafenib plus envafolimab versus physician's choice for metastatic GIST with KIT exon 17 mutation

  This study will test whether combining regorafenib with the immune drug envafolimab helps people with metastatic GIST who have KIT exon 17 mutations and have stopped responding to standard treatments.

  Recruiting Phase 2 Peking University Cancer Hospital & Institute · Beijing, Beijing Municipality · NCT07559864

• Comparing EFTR versus STER for removing small gastric GISTs

  This trial will test whether endoscopic full-thickness resection (EFTR) or submucosal tunneling endoscopic resection (STER) is better at completely removing small (1.0–3.5 cm) gastric GISTs in adults.

  Recruiting Chinese University of Hong Kong · Shanghai and 3 other locations · NCT07411118

• NB003 for Advanced GIST: testing a new therapy vs regorafenib in adults

  This trial tests NB003 in adults with advanced GI stromal tumors who have progressed on or cannot tolerate imatinib and sunitinib, comparing NB003 to regorafenib in different lines of therapy.

  Recruiting at 4 sites Phase 2/3 Ningbo Newbay Technology Development Co., Ltd · Hefei, Anhui and 31 other locations · NCT07379047

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.