Examining brain growth in infants with congenital heart disease

Altered Cerebral Growth and Development in Infants With Congenital Heart Disease

Observational University Children's Hospital, Zurich · NCT04233775

This study looks at how brain growth and development in infants with complex congenital heart disease are affected from pregnancy through their first three years of life.

Quick facts

Study typeObservational
Enrollment60 (estimated)
Ages0 Days to 6 Months
SexAll
SponsorUniversity Children's Hospital, Zurich Academic / other
Locations1 site (Zurich)
Trial IDNCT04233775 on ClinicalTrials.gov

What this trial studies

This observational study focuses on infants diagnosed with complex congenital heart disease (CHD) and aims to assess their brain growth and development through serial MRI examinations. The study will track changes in cerebral development starting from the third trimester of pregnancy and continuing through key surgical interventions in the first three years of life. By analyzing the impact of various risk factors on neurodevelopmental outcomes, the research seeks to understand the long-term effects of CHD on cognitive abilities. The study will include fetuses and neonates undergoing open-heart surgery while excluding those with additional congenital malformations or infections.

Who should consider this trial

Good fit: Ideal candidates for this study are fetuses and neonates diagnosed with complex congenital heart disease who are scheduled for open-heart surgery.

Not a fit: Patients with additional congenital malformations, brain malformations, congenital infections, or those born preterm before 37 weeks may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could provide insights into the neurodevelopmental challenges faced by infants with congenital heart disease, leading to improved care and interventions.

How similar studies have performed: While there is ongoing research in the area of congenital heart disease and neurodevelopment, this specific approach of using serial MRI examinations in this patient population is relatively novel.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

All fetuses and neonates with the diagnosis complex type of CHD undergoing open-heart surgery are prospectively enrolled

Exclusion Criteria:

a) Clinical evidence or suspicion of a congenital malformation or syndrome, b) brain malformation, c) congenital infection and d) preterms before 37 weeks. These criteria will exclude fetuses and newborns with other conditions that will impact neurodevelopmental outcome.

Where this trial is running

Zurich

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Neurodevelopmental DisordersCongenital Heart DiseaseBrain InjuriesFetal Growth Retardationcongenital heart diseasebrain imagingneurodevelopmental outcome
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.