Clinical trial Recruiting at 3 sites Observational

European database and biobank for childhood interstitial lung diseases

Official title: Orphans Unite: chILD Better Together - European Management Platform for Childhood Interstitial Lung Diseases / chILD-EU - International Register and Biobank for Children´s Interstital Lung Disease

Run by Ludwig-Maximilians - University of Munich · NCT02852928 · Data updated 2026-11-12

This study is creating a database and biobank to collect information and samples from children with interstitial lung diseases across Europe to improve their treatment and understanding of these conditions.

Quick facts

Study typeObservational
SexAll
Enrollment1000 (estimated)
SponsorLudwig-Maximilians - University of Munich
Academic / other
Drugs / interventionsradiation
Locations3 sites (Hanover, Lower Saxony and 2 other locations)
StatusRecruiting
StartedDecember 2013
Main results expectedDecember 2028
Study endsDecember 2029
Registry record updatedSeptember 21, 2022
Trial IDNCT02852928 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this study are children with suspected or confirmed diagnoses of interstitial lung diseases.

Probably not a fit

Patients with conditions that do not meet the inclusion criteria for interstitial lung diseases may not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This project aims to create a comprehensive European database and biobank for children with interstitial lung diseases (chILD). It will involve the collection of clinical data and biological samples from patients across multiple countries, including France, Germany, and the UK. The initiative will also focus on establishing standardized treatment protocols and guidelines through continuous assessment by a panel of experts. Additionally, it seeks to recruit a well-characterized cohort of chILD patients to enhance understanding and management of these conditions.

Why it matters

Potential benefit: If successful, this initiative could significantly improve the diagnosis and treatment of childhood interstitial lung diseases.

How similar studies have gone: Other studies have successfully established similar databases and biobanks, indicating a promising approach for improving patient outcomes.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* all children with suspected or
* verified diagnosis of ILD or
* masquerading as ILD and
* those with rare localized parenchymal lung diseases

Exclusion Criteria:

* other indication as inclusion criteria

Where it's running

  • Medizinische Hochschule Hannover
    Hanover, Lower Saxony, Germany
    Recruiting
  • Hacettepe University, Medical Faculty
    Ankara, Sihhiye, Turkey (Türkiye)
    Recruiting
  • University of Edinburgh
    Edinburgh, United Kingdom
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.