Educational support program for bilingual individuals with progressive aphasia and their caregivers

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study examines the benefits of an educational and support group program designed for individuals with progressive aphasia and their carepartners. It includes pre-, post-treatment, and follow-up assessments to evaluate the effects of psychoeducational support and communication skills training on psychosocial function and communicative effectiveness. Participants can join via telecommunication, and the program consists of two routes: one for individuals with progressive aphasia and another for caregivers, which includes an implementation phase for practicing learned strategies. The study aims to enhance understanding and coping strategies related to language-led dementia and progressive aphasia.

Why it matters

Who can join: the full rules

Inclusion Criteria:

All participants must:

* speak Spanish and/or English (although participants may speak other languages in addition to Spanish and/or English)
* identify as Hispanic and/or Latinx,
* or their spouse/family member with PA identifies as Hispanic and/or Latinx
* see and hear well enough to participate
* have access to a computer or mobile device with video capability
* have an internet connection

Additional inclusion criteria for PA/ language-led dementia support group participants:

* Individuals with PA:
* Has a diagnosis of PA, or language-led dementia, and aphasia is one of the primary causes of difficulty with activities of daily living
* Aware of language difficulties and willing to discuss them
* Able to actively engage in group discussion and complete activities with minimal support
* Able to regularly attend meetings
* Willing to follow the rules of the support group for interacting with others respectfully

Additional inclusion criteria for care partner support group plus implementation phase participants:

* Individuals with PA:
* Diagnosis of aphasia or dementia that is progressive in nature, and aphasia is one of the primary causes of difficulty with activities of daily living
* Have some ability to communicate and understand communication in order to participate in training sessions
* Are functionally able to engage in training sessions (e.g., able to maintain some attention, minimal challenging behavior that would cause disruption)
* Have a care partner who also consents to participating in the project
* Care partners:
* Self-identification as a caregiver of an individual with a diagnosis of PA or language-led dementia
* Willing to discuss caregiving for individuals with PA/ language-led dementia
* Able to regularly attend meetings
* Willing to follow the rules of the support group for interacting with others respectfully

Exclusion Criteria:

• Beyond the inclusion criteria included above, no additional exclusion criteria apply

Where it's running

• University of Texas at Austin
  Austin, Texas, United States Recruiting

Study contacts

• Study coordinator: Stephanie M Grasso, PhD
• Email: smgrasso@austin.utexas.edu
• Phone: 6268648957

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.