Digital platform for patients in palliative care and their families
Elepalliation - Digital Platform for Patienter i Palliation og Deres pårørende
This study tests a digital platform to see if it can help improve the quality of life for patients in palliative care and their families.
Quick facts
| Phase | Not applicable |
|---|---|
| Study type | Interventional |
| Enrollment | 182 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Aalborg University Academic / other |
| Locations | 1 site (ESbjerg) |
| Trial ID | NCT04995848 on ClinicalTrials.gov |
What this trial studies
This project focuses on implementing and evaluating a telepalliation program designed for patients receiving palliative care for conditions such as cancer, heart failure, chronic obstructive pulmonary disease, and neurological diseases. The study will assess the program from various perspectives, including clinical, psychosocial, inter-organizational, and health economic factors. Participants will utilize the digital platform TelePal.dk to enhance their quality of life during palliative care.
Who should consider this trial
Good fit: Ideal candidates include adults over 18 living in specific municipalities with conditions like cancer, heart failure, COPD, or neurological diseases who are referred to the Palliation Team.
Not a fit: Patients with delirium, active psychiatric conditions other than related depression or anxiety, or those unable to cooperate may not benefit from this study.
Why it matters
Potential benefit: If successful, this program could significantly improve the quality of life for patients in palliative care and their families.
How similar studies have performed: Other studies have shown promise in using digital platforms for palliative care, indicating potential success for this approach.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Over 18 years * Live in Esbjerg, Varde, Billund, Fanø or Vejen Municipality * Cancer, heart failure, chronic obstructive pulmonary disease (COPD), and motor neuron disease (neurological diseases) referred to the Palliation Team at Southwest Jutland Hospital * Basic computer skills or a relative who has basic computer skills Exclusion Criteria: * Delirium at enrolment based on CAM score * Active psychiatric history (as noted in the medical record) other than depression or anxiety related to the main diagnosis referred to palliative care * Lack of ability to cooperate
Where this trial is running
ESbjerg
- Palliative Team, South West Jutland Hospital — ESbjerg, Denmark (Recruiting)
Study contacts
- Principal investigator: Birthe Dinesen, MSc, PhD — Aalborg University
- Study coordinator: Birthe Dinesen, MSc, PhD
- Email: bid@hst.aau.dk
- Phone: +4520515944
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.