Culturally tailored intervention for advance care planning in Chinese Americans
Development of a Culturally Tailored Resilience-Building Intervention to Facilitate Advance Care Planning Discussions Between Chinese American Patients and Their Family Caregivers
This study is trying a new approach to help Chinese Americans with cancer or heart disease and their family caregivers have better conversations about planning for their future healthcare needs.
Quick facts
| Phase | Not applicable |
|---|---|
| Study type | Interventional |
| Enrollment | 36 (estimated) |
| Ages | 18 Years to 80 Years |
| Sex | All |
| Sponsor | University of Illinois at Chicago Academic / other |
| Locations | 1 site (Chicago, Illinois) |
| Trial ID | NCT06247215 on ClinicalTrials.gov |
What this trial studies
This pilot study aims to develop and assess a culturally tailored resilience-building intervention to improve advance care planning discussions among Chinese Americans with cancer or heart disease and their family caregivers. The study will involve qualitative interviews with religious leaders to understand how they address death-related topics, followed by usability testing of the intervention prototype with 18 pairs of participants. The focus is on enhancing the acceptability and feasibility of the intervention in the Chicago area.
Who should consider this trial
Good fit: Ideal candidates include Chinese Americans aged 18 and older with a diagnosis of cancer or heart disease who can communicate in English or Mandarin.
Not a fit: Patients who have cognitive impairments, have completed an advance directive, or were born in the US may not benefit from this study.
Why it matters
Potential benefit: If successful, this intervention could significantly improve advance care planning completion rates among Chinese Americans, leading to better end-of-life care.
How similar studies have performed: While there is limited data on culturally tailored interventions specifically for this demographic, similar approaches have shown promise in improving health outcomes in other minority populations.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion criteria for patient participants: * Age ≥ 18 years of age * Having a cancer diagnosis or a heart failure diagnosis documented in the electronic medical record * Being able to read and respond to questions in English or Mandarin * Having a family caregiver who is responsible for the care and willing to participate in the study * Being of non-Hispanic Asian race/ethnicity Exclusion criteria for patient participants: * Having cognitive impairment per a Short Portable Mental Status Questionnaire with more than 3 errors * Having received heart transplantation or a left ventricular assist device • Having completed an advance directive * Being born in the US Inclusion criteria for identified family caregivers: * Age ≥ 18 years * Being able to read and respond to questions in English or Mandarin * Being identified by the patient as a family caregiver
Where this trial is running
Chicago, Illinois
- University of Illinois Chicago — Chicago, Illinois, United States (Recruiting)
Study contacts
- Study coordinator: Li-Ting H. Longcoy
- Email: liting@uic.edu
- Phone: 312-996-3024
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.