Creating a database for patients with bronchiectasis and NTM in Canada
Official title: Development of a Canadian Bronchiectasis and NTM Database
Run by University of Calgary · NCT06144996 · Data updated 2026-11-12
This study is creating a database to gather information from adults with bronchiectasis and NTM to help improve care and understanding of these conditions.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years to 120 Years |
| Sex | All |
| Enrollment | 2000 (estimated) |
| Sponsor | University of Calgary Academic / other |
| Locations | 1 site (Calgary, Alberta) |
| Status | Recruiting |
| Started | January 1, 2023 |
| Main results expected | January 2050 |
| Study ends | January 2050 |
| Registry record updated | November 22, 2023 |
| Trial ID | NCT06144996 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are adults over 18 years old diagnosed with non-CF bronchiectasis or NTM.
✕Probably not a fit
Patients under the age of 18 or those with CF bronchiectasis will not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This project aims to establish a comprehensive patient registry for adults diagnosed with non-CF bronchiectasis and/or non-tuberculous mycobacterial pneumonia (NTM). Participants over the age of 18 will have their clinical data and quality of life assessments collected and entered into the registry. The goal is to enhance understanding of these conditions and improve patient care through better data collection and analysis.
Why it matters
Potential benefit: If successful, this registry could lead to improved treatment strategies and outcomes for patients with bronchiectasis and NTM.
How similar studies have gone: While this approach is focused on registry development, similar patient registries have shown success in improving understanding and management of chronic respiratory conditions.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Over the age of 18 * Non-CF Bronchiectasis * Nontuberculosis Mycobacteria (NTM) Exclusion Criteria: * Under the age of 18 * CF bronchiectasis
Where it's running
-
University of Calgary
Calgary, Alberta, Canada Recruiting
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
-
Chronic Respiratory Disease Participant Engagement
This study tests whether adults with long-term lung conditions can get comfortable with a clinical trials unit and research team before joining future trials.
-
Breathlessness in respiratory diseases: who feels it and why
This study tests how physiology, psychology, function, and breathing patterns relate to breathlessness in people with respiratory conditions compared with healthy controls.
-
Hypertonic saline inhalation for NTM lung disease
This trial tests whether starting inhaled 3% hypertonic saline early helps people with non-tuberculous mycobacterial lung disease feel better and clear bacteria better, compared with starting with normal saline first.
-
Azithromycin added to usual care to see if it lowers bronchiectasis flare-ups
This trial tests whether taking azithromycin daily for a year reduces bronchiectasis-related flare-ups in adults with non-cystic fibrosis bronchiectasis.
-
Bronchiectasis Phenotype Identification Model for Adults
This study tests a baseline classifier to categorize adults with non-cystic fibrosis bronchiectasis into phenotype groups using data collected over time.
-
BASE: Aiming to test a simple, objective way to gauge bronchiectasis severity and predict flare-ups
This study tests a new BASE framework to classify how severe non-cystic fibrosis bronchiectasis is right now and see if it can predict 12 months of worsening or flare-ups.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.