Collecting bile samples from patients with Primary Sclerosing Cholangitis and controls

Characterization of Biliary Cell-derived Organoids From Bile of PSC and Non-PSC Patients

Observational Mayo Clinic · NCT04753996

This study is collecting bile samples from people with Primary Sclerosing Cholangitis and healthy individuals to see how the disease affects the body and find new ways to treat it.

Quick facts

Study typeObservational
Enrollment300 (estimated)
Ages18 Years to 85 Years
SexAll
SponsorMayo Clinic Academic / other
Locations1 site (Rochester, Minnesota)
Trial IDNCT04753996 on ClinicalTrials.gov

What this trial studies

This research aims to gather bile, bile duct brushings, and medical information from individuals diagnosed with Primary Sclerosing Cholangitis (PSC) and healthy controls. Participants will provide samples during procedures like endoscopic retrograde cholangiopancreatography (ERCP) or gallbladder removal. The collected samples will be used to create bile-derived organoids, which will help researchers investigate disease-specific changes in biological pathways related to PSC and cholangiocarcinoma. This approach seeks to enhance understanding of the disease's pathogenesis and potential therapeutic targets.

Who should consider this trial

Good fit: Ideal candidates include adults aged 18-85 diagnosed with PSC or healthy controls without chronic liver disease.

Not a fit: Patients unable to provide informed consent or those with a history of liver transplantation or specific surgical procedures may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to improved understanding and treatment options for patients with PSC and cholangiocarcinoma.

How similar studies have performed: Other studies have shown promise in using organoids for understanding liver diseases, indicating that this approach may yield valuable insights.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

PSC

* Patients diagnosed with PSC between the age of 18 and 85.
* The diagnosis of PSC will be based on standard PSC criteria including clinical and biochemical evidence of chronic cholestasis of at least six months duration, positive cholangiographic findings and compatible liver biopsies if available.
* Women with PSC of childbearing potential and pregnant women will be offered enrollment because there is no risk to an unborn child in this investigation. Patients with PSC and Cholangiocarcinoma will be included.

Controls

• Controls without history of PSC or evidence of other chronic liver disease of either gender that will participate in this study should be between the ages of 18-85.

Exclusion Criteria:

* Patients unable to provide inform consent.
* Prisoners and institutionalized individuals.
* PSC with orthotopic liver transplantation
* History of Roux En Y procedure

Where this trial is running

Rochester, Minnesota

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Primary Sclerosing CholangitisPSCCholangiocarcinoma
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.