Kids First Data Resource Center: cloud-enabled data sharing for childhood cancer research
Official title: Gabriella Miller Kids First Pediatric Data Resource Center: Advancing Collaborative Platform-Enabled Data-Driven Discovery at the Intersection of Childhood Development and Cancer
Funded at Children's Hosp of Philadelphia · NIH-11581514 · Data updated 2026-11-12
A data resource project that makes pediatric cancer data and analyses more accessible to researchers, with the goal of advancing understanding and care for children with cancer.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Hosp of Philadelphia NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project start | September 1, 2026 |
| Project end | August 31, 2027 |
| Funding year | 2026 |
| Award (this year) | $1,000,000 |
| NIH project number | 3U2CHD109731-08S4 |
| Project ID | NIH-11581514 on NIH RePORTER |
Who could benefit from this research
✓Could help
Researchers and clinicians who work with pediatric cancer data and want to access harmonized datasets and cloud-based analysis tools.
✕Less likely to help
Direct clinical benefit to patients is not the primary aim; the impact is through enabling research that may lead to future improvements in treatments and outcomes.
What this research studies
This grant supports cloud-based data resources that organize and share over 1.2 million files from more than 30,000 participants. It uses dbGaP-integrated storage and AWS cloud services to enable storage, computation, and data access through portals like Kids First Portal, CAVATICA, PedcBioPortal, and FHIR. The focus is on harmonizing data and providing analysis-ready resources to researchers, with ongoing support for data management and cloud infrastructure. By improving data sharing and interoperability, it aims to accelerate discoveries in childhood development and cancer. Participation would involve researchers or institutions contributing data and utilizing the data platforms for analyses.
Why it matters
Potential benefit: If successful, patients could see faster translational insights and better collaboration across pediatric cancer research teams.
How similar studies have gone: Previous data-resource efforts in pediatric cancer have shown that shared datasets can accelerate discoveries and cross-site collaboration.
Where this research is happening
-
Children's Hosp of Philadelphia
Philadelphia, United States Active
Researchers
- Principal investigator: Resnick, Adam Cain — Children's Hosp of Philadelphia
- Study coordinator: Resnick, Adam Cain
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.