Georgia Cystic Fibrosis Data Warehouse goes cloud-enabled for many sites
Official title: The Georgia Cystic Fibrosis Data Warehouse
Funded at Emory University · NIH-11358139 · Data updated 2026-11-12
A program will turn the Georgia CF Data Warehouse into an automated, scalable cloud system that can join with other CF centers to support nationwide data sharing.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | March 1, 2024 |
| Project end | February 28, 2027 |
| Funding year | 2026 |
| Award (this year) | $211,653 |
| NIH project number | 3U24HL171672-03S1 |
| Project ID | NIH-11358139 on NIH RePORTER |
Who could benefit from this research
✓Could help
Patients with cystic fibrosis whose data may be included in the federated network or who may benefit from more coordinated care planning.
✕Less likely to help
Patients whose data is not part of the participating sites or whose care does not rely on data federation enhancements.
What this research studies
This project will replace manual, bespoke data processes with automated, cloud-native workflows to create a scalable national data network for cystic fibrosis. It will pilot onboarding of an external partner (Duke CF Center) to demonstrate secure data transfer, containerized ETL, and standardized OMOP mapping in a plug-and-play setup. A dynamic cloud-based simulation model will use real data to forecast resource needs and costs for expanding to more sites. The work aims to provide a reproducible framework that reduces manual effort and improves planning for future CF care networks.
Why it matters
Potential benefit: If successful, CF care teams could access faster, more reliable data to guide resource planning and patient care at multiple sites.
How similar studies have gone: Other large-scale data-sharing efforts have shown that automated, cloud-based data pipelines can improve scalability and reduce manual workload.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Stecenko, Arlene a — Emory University
- Study coordinator: Stecenko, Arlene a
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.