Family-centered risk information and screening education for children with genetic cancer risk
Official title: Family-centered Risk Information and Screening Education to Support Children with Genetic Cancer Risk
Funded at Dana-Farber Cancer Inst · NIH-11429759 · Data updated 2026-11-12
A family-focused, web-based program helps parents and their children understand genetic cancer risk and support regular cancer screening.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Dana-Farber Cancer Inst NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project start | August 1, 2026 |
| Project end | July 31, 2031 |
| Funding year | 2026 |
| Award (this year) | $766,699 |
| NIH project number | 1R01CA316855-01 |
| Project ID | NIH-11429759 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children and adolescents with genetic cancer risk and their families, across development from early childhood through adolescence and young adulthood.
✕Less likely to help
Families not facing genetic cancer risk or with limited access to digital resources may not benefit.
What this research studies
This project aims to create and test a web-based family intervention called Family RISE that delivers developmentally appropriate information about cancer risk and screening to children with genetic predispositions and their parents. It builds on prior work with adolescents and young adults and brings together experts in health communication, cancer genetics, oncology, and pediatric psychology from four programs. The program will help families cope with distress, communicate effectively about risk, and engage in life-saving screening.
Why it matters
Potential benefit: If successful, families could better understand genetic cancer risk and more consistently adhere to recommended screening, potentially catching cancers earlier.
How similar studies have gone: Prior work with AYAs showed promise; this project adapts and expands that approach for younger children and families.
Where this research is happening
-
Dana-Farber Cancer Inst
Boston, United States Active
Researchers
- Principal investigator: Mack, Jennifer W — Dana-Farber Cancer Inst
- Study coordinator: Mack, Jennifer W
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.