Helping young people with cancer understand their genetic risks
The AYA-RISE Intervention: Risk Information and Screening Education for Adolescents and Young Adults with Cancer Predisposition Syndromes
['FUNDING_U01'] · DANA-FARBER CANCER INST · NIH-9848695
This study is creating a special program to help teenagers and young adults with hereditary cancer risks learn about their health and make smart choices, while also supporting their families along the way.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | DANA-FARBER CANCER INST (nih funded) |
| Locations | 1 site (BOSTON, UNITED STATES) |
| Trial ID | NIH-9848695 on ClinicalTrials.gov |
What this research studies
This research focuses on developing a specialized program to help adolescents and young adults (AYAs) with hereditary cancer predisposition syndromes understand their cancer risks and make informed decisions about their health. The program includes genetic counseling tailored to the unique emotional and developmental needs of AYAs, aiming to empower them to take ownership of their health. By providing education and support, the intervention seeks to improve communication about cancer risks and encourage proactive health behaviors. The project will also explore how these interventions can positively impact not just the individuals but their families as well.
Who could benefit from this research
Good fit: Ideal candidates for this research are adolescents and young adults diagnosed with cancer who may have hereditary cancer predisposition syndromes.
Not a fit: Patients who do not have a hereditary cancer predisposition syndrome or who are not diagnosed with cancer may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly enhance the ability of young cancer patients to understand their genetic risks and make informed health decisions.
How similar studies have performed: Previous research has shown that tailored genetic counseling can improve understanding and decision-making in cancer risk, suggesting that this approach may be effective.
Where this research is happening
BOSTON, UNITED STATES
- DANA-FARBER CANCER INST — BOSTON, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: MACK, JENNIFER W — DANA-FARBER CANCER INST
- Study coordinator: MACK, JENNIFER W
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: neoplasm/cancer, Cancers