Data Core supports autism research data across PHASES centers
Official title: Data Core
Funded at Drexel University · NIH-11412957 · Data updated 2026-11-12
A data-sharing core supports autism research by securely collecting, storing, and analyzing health data from multiple sources to help improve understanding and care across the life course.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Drexel University NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project start | September 6, 2022 |
| Project end | August 31, 2027 |
| Funding year | 2026 |
| Award (this year) | $468,390 |
| NIH project number | 5P50HD111142-05 |
| Project ID | NIH-11412957 on NIH RePORTER |
Who could benefit from this research
✓Could help
Researchers and clinicians working with autism-related data across life stages may benefit from improved data access and analytic capacity.
✕Less likely to help
Direct patient participation is not a primary component of this core; outcomes depend on downstream projects using the data.
What this research studies
This grant funds a Data Core at Drexel University to centralize data activities for three autism projects under the PHASES Center of Excellence. It focuses on integrating diverse data sources like electronic health records, national claims, mortality data, and contextual data, while ensuring compliance and safety. The core will provide data management, collaboration, and statistical support to advance project aims and improve data visualization to share findings with stakeholders. By streamlining data operations and fostering cross-project collaboration, it aims to accelerate insights that could influence public health strategies for individuals with autism. The work is designed to be patient-centered in scope, leveraging real-world data to understand health outcomes over the life course.
Why it matters
Potential benefit: If successful, patients and families could see faster, data-driven improvements in autism care and public health strategies.
How similar studies have gone: Previous autism data cores and cross-center data collaborations have improved efficiency and insights in several centers, though specific implementations vary.
Where this research is happening
-
Drexel University
Philadelphia, United States Active
Researchers
- Principal investigator: Shea, Lindsay Lawer — Drexel University
- Study coordinator: Shea, Lindsay Lawer
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.