Creating a standardized data system for epilepsy research
Official title: Common Data Elements for Meaningful and Generalized Integration of PTE Research
Funded at University of Pennsylvania · NIH-11309420 · Data updated 2026-11-12
This study is working to create a shared way of collecting information about post-traumatic epilepsy, which can help researchers work together better and find effective treatments for people who develop this condition after a brain injury.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Pennsylvania NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project start | April 1, 2025 |
| Project end | March 31, 2026 |
| Funding year | 2025 |
| Award (this year) | $269,261 |
| NIH project number | 3U24NS134536-02S1 |
| Project ID | NIH-11309420 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals who have experienced traumatic brain injuries and are at risk of developing post-traumatic epilepsy.
✕Less likely to help
Patients with epilepsy not related to traumatic brain injuries may not benefit from this research.
What this research studies
This research aims to develop common data elements that will facilitate the integration and sharing of information related to post-traumatic epilepsy (PTE). By establishing a standardized framework, the project seeks to enhance collaboration among researchers and improve the quality of data collected in studies. This approach will help identify effective interventions for patients suffering from PTE, which often develops after traumatic brain injuries. The research will also focus on understanding the long-term impacts of PTE on cognitive function and overall health.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment options and better outcomes for patients with post-traumatic epilepsy.
How similar studies have gone: While there have been some studies focusing on biomarkers for PTE, this approach to standardizing data collection is relatively novel and untested.
Where this research is happening
-
University of Pennsylvania
Philadelphia, United States Active
Researchers
- Principal investigator: Wagenaar, Joost B — University of Pennsylvania
- Study coordinator: Wagenaar, Joost B
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.