Creating a centralized resource for evaluating Alzheimer's care programs
Data Core - The State Alzheimer's Research Support Center (StARS)
This study is working to create a central place to gather information about how well programs help people with Alzheimer's and their caregivers, so that researchers and policymakers can better understand what works best for them.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Minnesota NIH-funded |
| Lab location | 1 site (Minneapolis, United States) |
| Project ID | NIH-10986806 on NIH RePORTER |
What this research studies
This research aims to establish a centralized data core to evaluate the effectiveness of programs designed to support individuals with Alzheimer's disease and related dementias (AD/ADRD) and their caregivers. By overcoming barriers related to data privacy and accessibility, the project will create a comprehensive data warehouse that allows state policymakers and researchers to analyze the impact of dementia care initiatives. The approach involves collaboration among experts in AD/ADRD and data management to ensure robust evaluation of care programs and policies.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals diagnosed with Alzheimer's disease or related dementias, as well as their caregivers.
Not a fit: Patients with other forms of dementia not related to Alzheimer's or those without a diagnosis may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved dementia care programs that enhance the quality of life for patients and their caregivers.
How similar studies have performed: Previous research has shown success in using centralized data systems to evaluate healthcare programs, indicating a promising approach for this initiative.
Where this research is happening
Minneapolis, United States
- University of Minnesota — Minneapolis, United States (Active)
Researchers
- Principal investigator: Thomas, Kali St. Marie — University of Minnesota
- Study coordinator: Thomas, Kali St. Marie
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.