Connecting cancer patients to genomic testing and data sharing

Participant Engagement Unit

NIH-funded research Washington University · NIH-11191580

This program invites people with advanced cancers, including colorectal and bile-duct cancers, to provide tumor and normal samples and medical information so they can get genomic results and contribute to cancer knowledge.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionWashington University NIH-funded
Lab location1 site (Saint Louis, United States)
Project IDNIH-11191580 on NIH RePORTER

What this research studies

You may be contacted and invited to join a Washington University program that helps find, contact, and consent patients with advanced cancer. If you join, the team will help collect tumor and normal tissue or blood samples, gather your clinical and treatment information, and keep those data updated over time. The program aims to return research findings back to participants using patient-friendly tools and to guide you through the process of sample collection and result sharing. Patient groups are partnered with the team to shape how participants are engaged and how results are communicated.

Who could benefit from this research

Good fit: Ideal candidates are people with advanced cancers—especially colorectal cancer or cholangiocarcinoma—who can consent, provide tumor and/or normal samples, and share medical records and treatment data.

Not a fit: People without cancer, those unwilling or unable to provide samples or medical data, or those whose tumors cannot be sampled are unlikely to benefit directly from this program.

Why it matters

Potential benefit: If successful, participants could receive genomic findings from their tumor that might inform treatment choices and help guide future cancer care.

How similar studies have performed: Other patient-engagement and tumor-sequencing programs have sometimes identified clinically useful genetic findings for patients, though outcomes vary and are not guaranteed.

Where this research is happening

Saint Louis, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Advanced CancerCancersColorectal Cancer
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.