Caregiver-reported measure to gauge real-world impact of neglect after stroke
Official title: Development of a caregiver proxy-reported measure for unilateral spatial neglect post stroke
Funded at University of Pittsburgh at Pittsburgh · NIH-11453103 · Data updated 2026-11-12
A new caregiver-style questionnaire (the Neglect Impact Measure) is being developed to help capture how unilateral spatial neglect after stroke affects daily living from caregivers’ and patients’ perspectives.
Quick facts
| Grant type | R03 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Pittsburgh at Pittsburgh NIH-funded |
| Lab location | 1 site (Pittsburgh, United States) |
| Project start | September 15, 2026 |
| Project end | August 31, 2028 |
| Funding year | 2026 |
| Award (this year) | $159,000 |
| NIH project number | 1R03AG098091-01A1 |
| Project ID | NIH-11453103 on NIH RePORTER |
Who could benefit from this research
✓Could help
Caregivers and individuals who have had a stroke with unilateral spatial neglect and are involved in daily activities.
✕Less likely to help
Patients whose neglect does not affect daily activities or whose caregivers are not involved in care decisions may experience limited direct benefit.
What this research studies
This project creates a caregiver proxy-reported tool to measure how neglect after a stroke affects everyday activities at home and in the community. It uses guidance from the FDA and combines literature, expert input, and experiences from caregivers, patients, and clinicians to ensure the questions are meaningful and easy to answer. The team will test the content with an expert panel and through interviews with caregivers to refine the items before finalizing the measure. The goal is to enable better detection, tracking, and patient-centered care for neglect after stroke.
Why it matters
Potential benefit: If successful, clinicians will have a practical tool to understand real-world neglect impact and tailor treatments to improve daily functioning.
How similar studies have gone: There are existing neglect measures, but this project aims to create a caregiver-focused, real-world impact tool which is a novel addition.
Where this research is happening
-
University of Pittsburgh at Pittsburgh
Pittsburgh, United States Active
Researchers
- Principal investigator: Grattan, Emily — University of Pittsburgh at Pittsburgh
- Study coordinator: Grattan, Emily
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.