Advancing Craniosynostosis Care Career Enhancement Core
Official title: Advancing Craniosynostosis Treatment (ACT) Rare Diseases Consortium Career Enhancement Core
Funded at Children's Hosp of Philadelphia · NIH-11397543 · Data updated 2026-11-12
A program to train and connect clinicians and researchers so they can better care for patients with syndromic craniosynostosis.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Hosp of Philadelphia NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project start | August 19, 2025 |
| Project end | May 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $155,859 |
| NIH project number | 5U54DE035976-02 |
| Project ID | NIH-11397543 on NIH RePORTER |
Who could benefit from this research
✓Could help
Clinicians and researchers working in craniofacial care who are early in their career and willing to engage in translational research activities.
✕Less likely to help
Patients not involved in craniosynostosis care or those not participating in clinical training or research activities may not benefit directly.
What this research studies
This grant supports building a dedicated clinical research workforce in craniofacial care. It offers training through workshops, a virtual learning hub, coaching, and cross-site observer-ships to help clinicians from many specialties work together on translational care. The core aims to expand collaboration among early-stage investigators and broaden skills and perspectives in craniosynostosis research so care and research advance together. The project is hosted by Children’s Hospital of Philadelphia and led by Dr. Gregory Tasian, focusing on practical steps to bridge care delivery and clinical research.
Why it matters
Potential benefit: If successful, patients with syndromic craniosynostosis could receive faster, more informed care driven by integrated clinical research.
How similar studies have gone: Previous programs show that structured clinical research training can boost collaboration and translational outputs in rare diseases.
Where this research is happening
-
Children's Hosp of Philadelphia
Philadelphia, United States Active
Researchers
- Principal investigator: Tasian, Gregory Edward — Children's Hosp of Philadelphia
- Study coordinator: Tasian, Gregory Edward
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.