Condition
Tuberous Sclerosis Complex clinical trials and research
As of November 12, 2026, Find a Trial lists 4 Tuberous Sclerosis Complex clinical trials that are recruiting, at sites in 3 countries (most in Poland (2), Ireland (1), United States (1)). By phase: Phase 3 (1), Phase 2/3 (1). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 4Clinical trials
- 3Countries
Newest Tuberous Sclerosis Complex clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| Smartphone app to help follow the 2024 KDIGO chronic kidney disease guidelines | — | Dublin and 1 other locations | Recruiting | May 1, 2026 |
| Registry for pregnant women with Tuberous Sclerosis Complex and Lymphangioleiomyomatosis | — | Cincinnati, Ohio | Recruiting | Dec 7, 2023 |
| Evaluating Rapamycin for Drug Resistant Epilepsy in Tuberous Sclerosis Complex | Phase 3 | Lodz and 1 other locations | Recruiting | Sep 9, 2022 |
| Comparing Rapamycin and Vigabatrin for Preventing Symptoms of Tuberous Sclerosis in Infants | Phase 2/3 | Warsaw and 1 other locations | Recruiting | Aug 3, 2021 |
All recruiting trials (4)
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Smartphone app to help follow the 2024 KDIGO chronic kidney disease guidelines
This project will test whether a smartphone app helps young adults (ages 16–29) with chronic kidney disease follow the 2024 KDIGO guideline recommendations.
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Registry for pregnant women with Tuberous Sclerosis Complex and Lymphangioleiomyomatosis
This study is collecting information from pregnant women with Tuberous Sclerosis Complex and Lymphangioleiomyomatosis to see how their health and their babies' health are affected during pregnancy.
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Evaluating Rapamycin for Drug Resistant Epilepsy in Tuberous Sclerosis Complex
This study is testing if rapamycin can help people with drug-resistant epilepsy due to tuberous sclerosis complex feel better compared to a placebo.
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Comparing Rapamycin and Vigabatrin for Preventing Symptoms of Tuberous Sclerosis in Infants
This study is testing whether the medications rapamycin or vigabatrin can help prevent symptoms in infants with Tuberous Sclerosis.
Related topics
Quick answers
How many Tuberous Sclerosis Complex clinical trials are recruiting right now?
4, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 3 countries. The most sites are in Poland (2 trials), Ireland (1 trial), United States (1 trial). Each study page lists its sites and which ones are recruiting.
What phases are they in?
Phase 3: 1, Phase 2/3: 1. Trials with no phase listed are usually device, behavioural or observational studies.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.