Condition
FSHD2 clinical trials and research
As of November 12, 2026, Find a Trial lists 3 FSHD2 clinical trials that are recruiting, at sites in 10 countries (most in United States (2), Italy (2), Canada (1)). By phase: Phase 3 (1). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 3Clinical trials
- 10Countries
Newest FSHD2 clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| BetterLife FSHD: a patient-driven health platform | — | Randolph, Massachusetts | Recruiting | Feb 13, 2026 |
| Del-brax (AOC 1020) intravenous treatment for people with FSHD | Phase 3 | Orange, California and 45 other locations | Recruiting | Jun 26, 2025 |
| Assessing respiratory function in FSHD patients using diaphragmatic ultrasound | — | Roma | Recruiting | Oct 12, 2023 |
All recruiting trials (3)
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BetterLife FSHD: a patient-driven health platform
This project tries to connect people with FSHD to personalized resources and collect their health experiences so they can be matched to relevant studies and help improve care.
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Del-brax (AOC 1020) intravenous treatment for people with FSHD
This study will try regular IV infusions of del-brax (AOC 1020) in adults with FSHD to see if it slows muscle weakness and helps preserve walking ability.
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Assessing respiratory function in FSHD patients using diaphragmatic ultrasound
This study is testing how well diaphragmatic ultrasound can track changes in breathing function over a year in people with Facioscapulohumeral Muscular Dystrophy (FSHD).
Related topics
Quick answers
How many FSHD2 clinical trials are recruiting right now?
3, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 10 countries. The most sites are in United States (2 trials), Italy (2 trials), Canada (1 trial), Denmark (1 trial), France (1 trial). Each study page lists its sites and which ones are recruiting.
What phases are they in?
Phase 3: 1. Trials with no phase listed are usually device, behavioural or observational studies.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.