Condition
FSHD - Facioscapulohumeral Muscular Dystrophy clinical trials and research
As of November 12, 2026, Find a Trial lists 4 FSHD - Facioscapulohumeral Muscular Dystrophy clinical trials that are recruiting, at sites in 10 countries (most in United States (3), Netherlands (2), Canada (1)). By phase: Phase 3 (1), Phase 1 (1). Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 4Clinical trials
- 10Countries
Newest FSHD - Facioscapulohumeral Muscular Dystrophy clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| BetterLife FSHD: a patient-driven health platform | — | Randolph, Massachusetts | Recruiting | Feb 13, 2026 |
| Umbilical cord lining stem cell treatment for FSHD | Phase 1 | Palo Alto, California | Recruiting | Jul 25, 2025 |
| Del-brax (AOC 1020) intravenous treatment for people with FSHD | Phase 3 | Orange, California and 45 other locations | Recruiting | Jun 26, 2025 |
| Long-term follow-up of patients with facioscapulohumeral muscular dystrophy | — | Nijmegen | Recruiting | Apr 4, 2025 |
All recruiting trials (4)
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BetterLife FSHD: a patient-driven health platform
This project tries to connect people with FSHD to personalized resources and collect their health experiences so they can be matched to relevant studies and help improve care.
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Umbilical cord lining stem cell treatment for FSHD
This trial will try two intravenous doses of umbilical cord lining–derived stem cells (ULSC) versus placebo to see if they are safe and help people aged 15+ with genetically confirmed FSHD and moderate disease (Ricci score ≥3).
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Del-brax (AOC 1020) intravenous treatment for people with FSHD
This study will try regular IV infusions of del-brax (AOC 1020) in adults with FSHD to see if it slows muscle weakness and helps preserve walking ability.
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Long-term follow-up of patients with facioscapulohumeral muscular dystrophy
This study follows 200 people with facioscapulohumeral muscular dystrophy for ten years to see how the disease changes over time and to find better ways to treat it.
Related topics
Quick answers
How many FSHD - Facioscapulohumeral Muscular Dystrophy clinical trials are recruiting right now?
4, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
In 10 countries. The most sites are in United States (3 trials), Netherlands (2 trials), Canada (1 trial), Denmark (1 trial), France (1 trial). Each study page lists its sites and which ones are recruiting.
What phases are they in?
Phase 3: 1, Phase 1: 1. Trials with no phase listed are usually device, behavioural or observational studies.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.