Condition

FSHD clinical trials and research

• 4Clinical trials
• 11Countries

Newest FSHD clinical trials

All recruiting trials (4)

• Apitegromab for FSHD in Adults (Phase 2)

  This study tests whether apitegromab works as a standalone treatment for adults with FSHD.

  Recruiting Phase 2 Scholar Rock, Inc. · Austin, Texas · NCT07435129

• BetterLife FSHD: a patient-driven health platform

  This project tries to connect people with FSHD to personalized resources and collect their health experiences so they can be matched to relevant studies and help improve care.

  Recruiting FSHD Society · Randolph, Massachusetts · NCT07409142

• Del-brax (AOC 1020) intravenous treatment for people with FSHD

  This study will try regular IV infusions of del-brax (AOC 1020) in adults with FSHD to see if it slows muscle weakness and helps preserve walking ability.

  Recruiting at 28 sites Phase 3 Avidity Biosciences, Inc. · Orange, California and 45 other locations · NCT07038200

• Collecting motor and functional outcomes in patients with FSHD

  This study is tracking how Facioscapulohumeral Muscular Dystrophy affects movement and daily activities in about 450 people over three years to learn more about the condition.

  Recruiting at 18 sites University of Kansas Medical Center · Los Angeles, California and 20 other locations · NCT04635891

Related topics

Quick answers

How many FSHD clinical trials are recruiting right now?

4, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.

Where are these trials running?

In 11 countries. The most sites are in United States (4 trials), Canada (2 trials), United Kingdom (2 trials), Brazil (1 trial), Denmark (1 trial). Each study page lists its sites and which ones are recruiting.

What phases are they in?

Phase 2: 1, Phase 3: 1. Trials with no phase listed are usually device, behavioural or observational studies.

How do I join one?

Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.

Find the studies that fit you

A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.

Describe your situation →