Condition

Dravet Syndrome clinical trials and research

• 9Clinical trials
• 13Countries

Newest Dravet Syndrome clinical trials

All recruiting trials (9)

• ION337 safety and tolerability in children with Dravet syndrome

  This will test whether ION337 is safe and well tolerated in children ages 2 to 12 with Dravet syndrome.

  Recruiting at 7 sites Phase 1/2 Ionis Pharmaceuticals, Inc. · Ann Arbor, Michigan and 6 other locations · NCT07531745

• Tracking development, seizures, and biomarkers over four years in children and young adults with SCN1A-related Dravet syndrome

  This project will follow children and young people with SCN1A-related Dravet syndrome for four years to see how their development, seizure patterns, and blood metabolite markers change over time.

  Recruiting Assistance Publique - Hôpitaux de Paris · Paris, Ap-hp / DRCI · NCT07251673

• Fintepla for Dravet Syndrome: testing brain blood flow and connections

  This study tests how Fintepla affects brain blood flow and network connections in Dravet syndrome patients who have convulsive seizures.

  Recruiting Phase 4 The University of Texas Health Science Center, Houston · Houston, Texas · NCT07112365

• PET‑MRI mapping of brainstem serotonin pathways in adults with Dravet syndrome

  This uses a PET‑MRI scan with the tracer [18F]MPPF to see if serotonin pathways in the brainstem differ in adults with Dravet syndrome compared with healthy controls.

  Recruiting Hospices Civils de Lyon · Bron, Rhone · NCT07013331

• Testing BMB-101 for Absence Epilepsy and Related Conditions

  This study is testing a new treatment called BMB-101 to see if it can help reduce seizures in people with Absence Epilepsy and related conditions.

  Recruiting at 5 sites Phase 2 Bright Minds Biosciences Pty Ltd · Randwick, New South Wales and 4 other locations · NCT06401538

• Measuring GABA Levels in Children with Dravet Syndrome

  This study is trying to measure GABA levels in the brains of children with Dravet Syndrome to see how they compare to kids without the condition, hoping to find new ways to understand and treat the syndrome.

  Recruiting Cook Children's Health Care System · Fort Worth, Texas · NCT05651204

• Evaluating ETX101 for treating Dravet syndrome in young children

  This study is testing a new treatment called ETX101 to see if it can help reduce seizures in young children with Dravet syndrome.

  Recruiting at 13 sites Phase 1/2 Encoded Therapeutics · San Francisco, California and 13 other locations · NCT05419492

• Real-life follow-up of rare epilepsies in children and adolescents

  This project will follow children and teens with rare epilepsies to see how they respond to treatments and how cognitive and psychiatric problems change over time.

  Recruiting at 11 sites Assistance Publique - Hôpitaux de Paris · Angers and 10 other locations · NCT05126914

• Evaluating clemizole hydrochloride for treating Dravet syndrome

  This study is testing if clemizole hydrochloride can help children and adults with Dravet syndrome who still have seizures despite taking other medications.

  Recruiting at 57 sites Phase 3 Epygenix · Birmingham, Alabama and 85 other locations · NCT04462770

Related topics

Quick answers

How many Dravet Syndrome clinical trials are recruiting right now?

9, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.

Where are these trials running?

In 13 countries. The most sites are in United States (5 trials), France (3 trials), Australia (2 trials), Canada (2 trials), United Kingdom (2 trials). Each study page lists its sites and which ones are recruiting.

What phases are they in?

Phase 1/2: 2, Phase 2: 1, Phase 3: 1, Phase 4: 1. Trials with no phase listed are usually device, behavioural or observational studies.

How do I join one?

Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.

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