Web-based intervention for teens and young adults with sickle cell disease

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study tests the effectiveness of SMYLS, a mobile health intervention aimed at helping adolescents and young adults with sickle cell disease manage their symptoms and improve self-management behaviors. The intervention includes a mobile app that provides educational materials and a voice crisis alert system. Researchers will evaluate its impact on self-management, quality of life, transition readiness, healthcare utilization, and pain interference, while also exploring factors that influence patient activation and self-management outcomes.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* documentation in the electronic health record of any type of SCD
* owns mobile device compatible with the intervention
* access to the internet

Exclusion Criteria:

* Plans to relocate outside of study site area in the next 12 months
* Plans to transition to adult care in 12 months or less
* Parent/caregiver or provider report of neurocognitive impairment that precludes ability to use intervention and participate in study
* non-English speaking

Where it's running

• Medical University of South Carolina
  Charleston, South Carolina, United States Recruiting

Study contacts

• Study coordinator: Shannon Phillips, PhD, RN
• Email: phillipss@musc.edu
• Phone: 843-792-9379

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

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• Virtual reality options to help with VOC pain in adults with SCD

  This study tests whether headset-based virtual reality can help reduce pain for adults with sickle cell disease during vaso-occlusive crises treated in an infusion center.

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.