Validation of a screening program for undiagnosed myasthenia gravis using social media and self-assessment

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to validate a self-assessment tool designed to encourage individuals with undiagnosed neuromuscular symptoms to seek medical evaluation for suspected myasthenia gravis (MG). Participants will be recruited through a social media campaign and will complete a series of assessments, including the Impact of Daily Living (IDL) Survey and MG Physical Tests, to evaluate their symptoms. A neurologist will review the results to determine if further evaluation is necessary. The study expands on a pilot study that successfully diagnosed MG in previously undiagnosed individuals.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Reside within the 50 states of the United States at the time of enrollment
* Age 19 or older if reside in Nebraska or Alabama, Age 21 or older if reside in Mississippi, Age 18 years or older if reside in any other state
* Active email account
* Fluency in English (spoken / written), as demonstrated by the ability to read and sign the Informed Consent Form

Exclusion Criteria:

* Live in an overseas territory of the United States
* Inability or unwillingness to provide written informed consent
* Diagnosed myasthenia gravis, including sero-negative MG\*
* Diagnosed multiple sclerosis
* Have speech impairment, eye/arm/leg weakness due to diagnosed brain cancer, or stroke

Where it's running

• ZS Associates
  Evanston, Illinois, United States Recruiting

Study contacts

• Study coordinator: Ananda Vishnu Pandurangadu, MD
• Email: support@unearthrootcause.com
• Phone: 1-847-448-1001

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.