UNTOLD: Survey on Unmet Needs After Ovarian Cancer
UNderstanding The Experience of Ovarian Cancer Life After Diagnosis (UNTOLD) Study
This project will ask people who have had ovarian cancer to complete a one-time survey (and some a follow-up interview) to learn about ongoing concerns and unmet needs.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 2000 (estimated) |
| Ages | 18 Years and up |
| Sex | Female |
| Sponsor | Masonic Cancer Center, University of Minnesota Academic / other |
| Locations | 1 site (Minneapolis, Minnesota) |
| Trial ID | NCT07070726 on ClinicalTrials.gov |
What this trial studies
The UNTOLD study uses a mixed-methods approach to measure ongoing concerns and unmet needs among ovarian cancer survivors. Participants will complete a one-time survey about quality of life and survivorship experiences, and up to 40 respondents will be invited for a follow-up interview to explore issues in more depth. Recruitment combines population-based sampling through the California Cancer Registry with outreach via ovarian cancer advocacy groups to enhance representativeness. The study is coordinated by the Masonic Cancer Center at the University of Minnesota and requires the ability to read and write English.
Who should consider this trial
Good fit: Adults diagnosed with ovarian cancer, primary peritoneal cancer, or fallopian tube cancer who can read and write English are the intended participants.
Not a fit: People who cannot read or write English or who do not have ovarian, primary peritoneal, or fallopian tube cancer are not eligible and would not directly benefit from participating.
Why it matters
Potential benefit: If successful, the findings could help healthcare providers and advocacy groups create better survivorship resources and support tailored to ovarian cancer survivors' real needs.
How similar studies have performed: Similar survivorship surveys and mixed-methods research have previously identified actionable unmet needs, so this approach is established in the field.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Ability to read and write in English * Diagnosed with ovarian cancer (ovarian, primary peritoneal, fallopian tube) Exclusion Criteria: \-
Where this trial is running
Minneapolis, Minnesota
- Masonic Cancer Center — Minneapolis, Minnesota, United States (Recruiting)
Study contacts
- Study coordinator: Rachel Vogel, PhD
- Email: isak0023@umn.edu
- Phone: 612-624-6928
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.