Understanding the needs of siblings of children with cancer
Siblings to a Child with Cancer: Psychometric Evaluations of Instruments Assessing Siblings Needs and Pre-loss Grief
Ersta Sköndal University College · NCT06854822
This study looks at the emotional struggles of siblings of kids with cancer to see how they feel and what support they need during this tough time.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 200 (estimated) |
| Ages | 12 Years to 24 Years |
| Sex | All |
| Sponsor | Ersta Sköndal University College (other) |
| Locations | 1 site (Stockholm) |
| Trial ID | NCT06854822 on ClinicalTrials.gov |
What this trial studies
This observational study aims to explore the psychosocial needs and pre-loss grief experienced by siblings of children diagnosed with cancer. It focuses on identifying the emotional challenges these siblings face, including feelings of loneliness, fear of death, and unresolved grief. The study seeks to develop a standardized assessment tool in Swedish to better understand and address the needs of these often-overlooked children during their sibling's illness. By gathering data on their experiences, the study aims to inform better support strategies for this vulnerable group.
Who should consider this trial
Good fit: Ideal candidates for this study are Swedish-speaking siblings aged 12-24 who have a brother or sister currently undergoing treatment for childhood cancer.
Not a fit: Patients who have already lost their sibling to cancer will not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to improved psychological support for siblings of children with cancer, enhancing their emotional well-being.
How similar studies have performed: While there has been some progress in understanding the needs of siblings in similar contexts, this specific approach to developing a standardized assessment tool is relatively novel.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Age: 12-24 years * Have a brother or sister with childhood cancer * Swedish speaking siblings Exclusion Criteria: -Bereaved siblings
Where this trial is running
Stockholm
- Marie Cederschiöld Unicersity College — Stockholm, Sweden (RECRUITING)
Study contacts
- Principal investigator: Malin Lövgren, PhD — Marie Cederschiöld University
- Study coordinator: Malin Lövgren, PhD
- Email: malin.lovgren@mchs.se
- Phone: 0733302789
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Childhood Cancer, Siblings, Psychosocial Functioning