Understanding the natural history of tuberculosis

Natural History of Tuberculosis

Observational National Institutes of Health Clinical Center (CC) · NCT01212003

This study is trying to learn more about tuberculosis by collecting samples and monitoring treatment in people with active or latent TB to improve how we understand and treat the disease.

Quick facts

Study typeObservational
Enrollment150 (estimated)
Ages2 Years to 100 Years
SexAll
SponsorNational Institutes of Health Clinical Center (CC) NIH
Locations1 site (Bethesda, Maryland)
Trial IDNCT01212003 on ClinicalTrials.gov

What this trial studies

This observational study aims to collect blood and other samples from individuals with active or latent tuberculosis to investigate the natural history of the disease. Participants aged 2 years and older will undergo physical examinations and provide blood samples, with additional sputum and skin tissue samples collected from those with active TB. The study will also monitor the treatment of active TB patients and explore genetic and immune factors related to tuberculosis. The goal is to enhance understanding of TB pathogenesis and improve treatment strategies.

Who should consider this trial

Good fit: Ideal candidates include individuals aged 2 years and older who have active or latent tuberculosis.

Not a fit: Patients who do not have tuberculosis or are unable to provide informed consent may not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to improved understanding and treatment of tuberculosis, particularly in drug-resistant cases.

How similar studies have performed: Other studies have shown success in understanding tuberculosis through similar observational approaches, but this study may also explore novel genetic factors.

Eligibility criteria

Show full inclusion / exclusion criteria
* INCLUSION CRITERIA:

FOR ALL PATIENTS

Patients may be included in this study who:

* Have or are suspected to have TB infection.
* Are aged 2 years or older.
* Have a primary care physician, infectious diseases physician, pulmonologist, or TB specialist outside of the NIH who can provide care of his or her TB infection outside the NIH, provide directly observed therapy (DOT) if necessary, and monitor for side effects and toxicity of TB medications.
* Are willing to consent to storage of specimens for future research.
* Able to provide informed consent for themselves or, if they lack the capacity to provide informed consent, have an appropriate Legally Authorized Representative (LAR; the study team will comply with NIH Human Research Protection Program \[HRPP\] Policy 403).

FOR PATIENTS WITH LATENT TB

In addition to the above-described inclusion criteria for all patients, patients may be included in the Latent TB part of this protocol who:

-Have documented evidence of a positive purified protein derivative (PPD) skin test or Interferon-gamma Release Assays (IGRA) test meeting American Thoracic Society (ATS)/CDC guidelines for latent TB; conversion can have occurred at any time.

FOR PATIENTS WITH ACTIVE TB

In addition to the above-described inclusion criteria for all patients, patients may be included in the Active TB part of this protocol who:

* Have active TB of any drug susceptibility pattern and any site of infection as determined by smear, culture, or biopsy.
* Have appropriately documented clinically suspicious active TB without definitive microbiology confirmation.

EXCLUSION CRITERIA:

Patients will be excluded from this study who:

* Are incarcerated.
* Have been ordered by a court to take TB medications.
* Are unwilling or unable to comply with prescribed therapy.
* Are pregnant.

EXCLUSION OF SPECIFIC POPULATIONS

Children: Children under the age of 2 are not eligible to enroll. The addition of the very young will not provide enough additional insights to justify the risk to this specific population.

Pregnant women: Pregnant women are not eligible for participation in this protocol because the study objectives can be achieved without the enrollment of this population. Enrolled participants who become pregnant during the study will be withdrawn.

Where this trial is running

Bethesda, Maryland

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Mycobacterium InfectionsTuberculosis, Multidrug-ResistantLatent TuberculosisTuberculosisExtensively Drug-Resistant TuberculosisTBMycobacterium TuberculosisActive Tuberculosis
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.