Understanding Living Wills in Patients with Rheumatic Diseases
Knowledge of Living Will in Patients With Rheumatic Diseases. A Case-control Study
National Institute of Medical Sciences and Nutrition, Salvador Zubiran · NCT05676359
This study is trying to see how well patients with rheumatic diseases and their healthy family members understand living wills and how it relates to their quality of life.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 157 (estimated) |
| Ages | 18 Years to 100 Years |
| Sex | All |
| Sponsor | National Institute of Medical Sciences and Nutrition, Salvador Zubiran (other) |
| Locations | 1 site (Mexico City) |
| Trial ID | NCT05676359 on ClinicalTrials.gov |
What this trial studies
This observational study aims to assess the knowledge and perceptions of living wills among patients with rheumatic diseases and their healthy family members. It will involve patients attending the Department of Immunology and Rheumatology in Mexico City, where their quality of life, disability, and understanding of living wills will be evaluated. Various assessments, including the Health Assessment Questionnaire and the WHOQOL-BREF, will be utilized to gather comprehensive data on participants' health outcomes and sociodemographic characteristics.
Who should consider this trial
Good fit: Ideal candidates include patients diagnosed with rheumatic diseases who are attending the outpatient department in Mexico City.
Not a fit: Patients with severe diseases or those in palliative care may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could enhance patient awareness and utilization of living wills, leading to better end-of-life decision-making for individuals with rheumatic diseases.
How similar studies have performed: While there is limited research specifically addressing living wills in rheumatic disease populations, similar studies in chronic illness contexts have shown positive outcomes in patient awareness and decision-making.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: Cases * Patients with a rheumatic disease diagnostic by a rheumatologist * Patients with rheumatic diseases attending the Department of Immunology and Rheumatology in Mexico City outpatient department * Patients who agree to participate in the study, who complete and sign the informed consent Controls * Relative of a patient with rheumatic diseases of the same sex and age ± 5 years, without known rheumatic and/or chronic disease and without the use of pharmacological treatment for more than 7 days during the month before study entry. Exclusion Criteria: Cases * Patients with severe diseases or in palliative care by a rheumatologist Controls - Withdrawal of the study
Where this trial is running
Mexico City
- Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán — Mexico City, Mexico (RECRUITING)
Study contacts
- Principal investigator: Virginia Pascual-Ramos, Dr. — National Institute of Medical Sciences and Nutrition, Salvador Zubiran
- Study coordinator: Virginia Pascual-Ramos, Dr.
- Email: virtichu@gmail.com
- Phone: 55 5487 0900
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Rheumatic Disorder, Rheumatic diseases, living will