Understanding barriers and facilitators to hydroxyurea use for sickle cell disease in Jamaica
Access to Care for SCD Management in Jamaica: Enablers and Barriers to Hydroxyurea Utilization
The University of The West Indies · NCT05909657
This study looks at what helps or stops people in Jamaica with sickle cell disease from using hydroxyurea to see how to improve their access to this important treatment.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 450 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | The University of The West Indies (other) |
| Locations | 1 site (Kingston, Saint Andrew) |
| Trial ID | NCT05909657 on ClinicalTrials.gov |
What this trial studies
This observational study aims to explore the barriers and enablers affecting the use of hydroxyurea among patients with sickle cell disease (SCD) in Jamaica. It will involve collecting data through questionnaires from SCD patients aged 18 and over, caregivers of children with SCD, and healthcare providers such as physicians, nurses, and pharmacists. The study seeks to identify factors that influence access to care and the utilization of hydroxyurea, which is crucial for improving health outcomes in SCD patients. The findings will inform strategies to enhance healthcare access and hydroxyurea uptake, potentially benefiting patients and the healthcare system.
Who should consider this trial
Good fit: Ideal candidates for this study include adults with sickle cell disease and caregivers of children with the condition.
Not a fit: Patients under the age of 18 or those who are acutely ill may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to improved access to hydroxyurea treatment for sickle cell disease patients, enhancing their health outcomes and quality of life.
How similar studies have performed: While there may be studies on hydroxyurea use in other regions, this specific focus on barriers and enablers in Jamaica is novel and has not been extensively tested.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * SCD Patients (ages 18 and over) * Adult Caregivers of SCD Children/Adolescents under 18 years * Healthcare Providers: Physicians, Nurses and Pharmacists who treat and interact with sickle cell patients Exclusion Criteria: * SCD patients below age 18 years * SCD patients who are acutely ill
Where this trial is running
Kingston, Saint Andrew
- Sickle Cell Unit - Caribbean Institute for Health Research — Kingston, Saint Andrew, Jamaica (RECRUITING)
Study contacts
- Study coordinator: Monika Asnani, DM, PhD
- Email: monika.parshadasnani@uwimona.edu.jm
- Phone: 8769776151
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Sickle Cell Disease, hydroxyurea, access to care, Jamaica