Understanding autism in Kent, Surrey, and Sussex
Broad Phenotype Children With Autism in Kent, Surrey, and Sussex: Developing a Self-Report Questionnaire Prioritising Individual Self-Care
This study is trying to find out how many children and young people have autism in Kent, Surrey, and Sussex, and what support they need to improve their quality of life.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 30 (estimated) |
| Ages | 6 Years to 16 Years |
| Sex | All |
| Sponsor | Sussex Community NHS Foundation Trust Academic / other |
| Locations | 1 site (Brighton) |
| Trial ID | NCT06133673 on ClinicalTrials.gov |
What this trial studies
This observational research aims to assess the prevalence of autism among children and young people in the Kent, Surrey, and Sussex regions. By collecting data from primary and secondary schools about the number of autistic students, and interviewing autistic children aged 6-16 about their support needs, the study seeks to develop a quality-of-life measure. This information will help identify gaps in support and improve intervention strategies for autistic individuals in these areas. The focus is on understanding local autism characteristics to enhance future care and support.
Who should consider this trial
Good fit: Ideal candidates for this study are children aged 6-16 with an autism diagnosis who attend primary or secondary schools in Kent, Surrey, and Sussex.
Not a fit: Patients who may not benefit from this study include those outside the age range of 6-16, those without an autism diagnosis, and non-verbal children.
Why it matters
Potential benefit: If successful, this research could lead to improved support and interventions for autistic children and young people in the KSS area.
How similar studies have performed: While there have been studies on autism prevalence, this specific focus on the KSS region and the development of a local quality-of-life measure is relatively novel.
Eligibility criteria
Show full inclusion / exclusion criteria
For the survey, the inclusion criteria are: - Primary and secondary schools in Kent, Surrey and Sussex For the CYP interviews, the inclusion criteria are: * Aged 6-16 * Attends a school in Kent, Surrey and Sussex * Autism diagnosis For the survey, the exclusion criteria includes: * Nurseries * Higher education schools * Schools outside of Kent, Surrey and Sussex For the CYP interviews, the exclusion criteria includes: * Children outside of 6-16 age range * Children without autism diagnosis * Non-verbal children * Parent/carer unable or unwilling to agree for their child to take part
Where this trial is running
Brighton
- Sussex Community NHS Foundation Trust — Brighton, United Kingdom (Recruiting)
Study contacts
- Principal investigator: Sophie McGrevey — Sussex Community NHS FT
- Study coordinator: Helen Vaughan
- Email: helenvaughan@nhs.net
- Phone: 44 1273 696011
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.