Transitioning to Adult Care for Kids with Rare Endocrine Disorders
Official title: Transition of Care in Pediatric Rare Endocrine Disorders: Assessing Unmet Needs and Implementing a Standardized Transition Program
Run by Seoul National University Hospital · NCT07786142 · Data updated 2026-11-12
We’re testing a structured transition program to help young adults move from pediatric to adult endocrine care and see if it improves staying in care and quality of life.
Quick facts
| Study type | Interventional |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 150 (estimated) |
| Sponsor | Seoul National University Hospital Academic / other |
| Locations | 11 sites (Daegu and 10 other locations) |
| Status | Recruiting |
| Started | May 20, 2026 |
| Main results expected | December 31, 2028 |
| Study ends | December 31, 2028 |
| Registry record updated | August 25, 2026 |
| Trial ID | NCT07786142 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are 18 years or older with a pediatric-onset rare endocrine disorder who are currently followed by pediatric endocrinology and willing to participate in the transition program.
✕Probably not a fit
Patients not transitioning to adult care or not receptive to the program may see limited benefit.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This trial will look at how transitions from pediatric to adult endocrinology are currently done and what patients experience after transfer. It includes a retrospective review of medical records, a survey of adults about their transition experiences and well-being, and a prospective evaluation of a standardized transition program for eligible participants aged 18 and older. The program provides readiness assessments, personalized education, a summarized clinical information package, coordinated handoffs between teams, and follow-up after transfer. Outcomes will include transfer and retention in adult care, readiness, quality of life, appointment attendance, satisfaction, and clinical results.
Why it matters
Potential benefit: If successful, the program could make it easier for patients to stay in adult care and improve overall health during the transition.
How similar studies have gone: Previous work suggests structured transition programs can improve engagement, but evidence in this specific population is limited and timelines vary.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Age 18 years or older. * Diagnosis of a pediatric-onset rare endocrine disorder, including rare metabolic bone and mineral disorders, hypopituitarism, congenital adrenal hyperplasia, rare endocrine tumors, and syndromic or chromosomal disorders requiring endocrine care. * Currently receiving follow-up care in the pediatric endocrinology department of a participating institution. * Willing to participate in the standardized transition-of-care program and able to provide written informed consent. Exclusion Criteria: * none
Where it's running
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Seoul National University Hospital
Seoul, South Korea Recruiting -
Daegu Catholic University Medical Center
Daegu, South Korea Not yet recruiting -
Kyungpook National University Hospital
Daegu, South Korea Not yet recruiting -
Chungnam National University Hospital
Daejeon, South Korea Not yet recruiting -
Chonnam National University Hospital
Gwangju, South Korea Not yet recruiting -
Hwasun Chonnam National University Hospital
Hwasun, South Korea Not yet recruiting
Show 5 more locations
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Inha University Hospital
Incheon, South Korea Not yet recruiting -
Jeonbuk National University Hospital
Jeonju, South Korea Not yet recruiting -
Seoul National University Bundang Hospital
Seongnam, South Korea Not yet recruiting -
Konkuk University Medical Center
Seoul, South Korea Not yet recruiting -
Korea University Guro Hospital
Seoul, South Korea Not yet recruiting
Study contacts
- Principal investigator: Yun Jeong Lee — Seoul National University Hospital
- Study coordinator: Yun Jeong Lee
- Email: yjlee103@snu.ac.kr
- Phone: 82-2-2072-2811
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.