Training program to improve end-of-life care for older African Americans

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This initiative aims to enhance the quality of end-of-life (EoL) care for older African Americans by addressing cultural values and preferences in EoL communication. The program utilizes community-developed storytelling videos to foster empathy regarding experiences of racism in healthcare. It includes guidelines for culturally appropriate EoL care and training to recognize and manage implicit bias among clinicians. The goal is to empower healthcare providers to deliver goal-concordant care that aligns with the values of African American patients and their families.

Why it matters

Who can join: the full rules

Inclusion Criteria: Aim 1.1

Person with serious Illness:

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age ≥60 years
* English-speaking
* Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.

Bereaved family member:

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age ≥60 years
* English-speaking
* Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.

Exclusion Criteria

Person with serious illness:

-Cannot be receiving hospice care

Bereaved Family Member:

-Cannot be a paid "sitter"

Inclusion Criteria: Aim 1.2

Bereaved Family member:

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age ≥60 years
* English-speaking
* Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys

Pastors:

* Self-identifying as African American
* White, Non-Hispanic or Latino
* Sged ≥18 years old.

Inclusion Criteria: Aim 3

Clinician eligibility:

* Practice at a University of Alabama at Birmingham (UAB) or Montefiore/Einstein site that provides care to patients eligible for outcomes surveys
* At least 3 months of clinical practice at the study site prior to the intervention training to measure pre-intervention patient surveys

Exclusion criteria:

-Lack of at least 3 months of clinical practice at the study site prior to the intervention training.

Patient eligibility:

* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino, 3. age ≥60 years
* English-speaking
* Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score ≥4
* Able to complete baseline surveys.

Exclusion criteria include:

-Currently receiving hospice care.

Family member eligibility:

* Age ≥ 18 years
* English-speaking
* Community-dwelling
* Unpaid care provider of a person with a serious illness.

Exclusion criteria: 1. Cannot be a paid "sitter".

Where it's running

• UAB
  Birmingham, Alabama, United States Recruiting
• Albert Einstein/Montefiore
  The Bronx, New York, United States Recruiting

Study contacts

• Principal investigator: Jennifer Tjia, MD, MSCE — University of Massachusetts, Worcester
• Study coordinator: Ronit Elk, PhD
• Email: relk@uabmc.edu
• Phone: 205.996.1702

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.