Telehealth in MND: TiM online platform for people with MND
Official title: Telehealth in MND-Research (TIM-R): A Research Database for MND
Run by University of Sheffield · NCT07132879 · Data updated 2026-11-12
This project lets people with MND in the UK use an online telehealth platform to learn about and sign up for MND studies and share health information from home.
Quick facts
| Study type | Observational |
|---|---|
| Sex | All |
| Enrollment | 1000 (estimated) |
| Sponsor | University of Sheffield Academic / other |
| Locations | 1 site (Sheffield) |
| Status | Recruiting |
| Started | December 14, 2024 |
| Main results expected | December 14, 2074 |
| Study ends | December 14, 2074 |
| Registry record updated | August 20, 2025 |
| Trial ID | NCT07132879 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are people living with MND who are based in the UK and are willing and able (or have a carer to help) to use an online platform to complete questionnaires or join study activities.
✕Probably not a fit
People who live outside the UK, who lack reliable internet access or device support, or who need direct clinical treatment rather than research participation are unlikely to benefit from this platform.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
TiM-Research is an observational, prospective database built on the existing TiM telehealth platform to enable people with MND across the UK to take part in research remotely. Participants register on the platform, receive information about available MND studies, and can opt into activities such as online questionnaires, interviews, focus groups, or providing biosamples like saliva. The platform was co-developed with people with MND, carers, and healthcare professionals and is designed to be low burden and usable by people with significant disability. Data and participation preferences are managed online, and participants receive updates on research results from the UK MND Research Institute.
Why it matters
Potential benefit: If successful, TiM-Research could make it much easier for people with MND to take part in research from home, increasing participation and the speed of data collection.
How similar studies have gone: This project builds on the TiM-C telehealth care system, which was co-developed with patients and clinicians and showed high acceptability, ease of use, and clinician-reported accuracy in prior work.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * People living with MND * Living in the UK
Where it's running
-
University of Sheffield
Sheffield, United Kingdom Recruiting
Study contacts
- Principal investigator: Chris McDermott, MBChB, FRCP, PhD — University of Sheffield
- Study coordinator: Liam Knox, PhD
- Email: l.knox@sheffield.ac.uk
- Phone: +44 114 222 2291
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.