Clinical trial Recruiting at 1 site Observational Ages 13 and up

Survey to help families decide on scoliosis treatment

Official title: Your Scoliosis Journey: A Survey for Patients Treated for Scoliosis and Their Families

Run by Mayo Clinic · NCT03017755 · Data updated 2026-11-12

This study is trying to understand what factors help families choose the best treatment for their child's scoliosis by collecting their thoughts on options like observation, bracing, or surgery.

More Scoliosis trials

Quick facts

Study typeObservational
Ages13 Years and up
SexAll
Enrollment5000 (estimated)
SponsorMayo Clinic
Academic / other
Locations1 site (Rochester, Minnesota)
StatusRecruiting
StartedApril 11, 2017
Main results expectedDecember 1, 2026
Study endsDecember 15, 2026
Registry record updatedJanuary 2, 2026
Trial IDNCT03017755 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include families of adolescents who have previously been treated for Adolescent Idiopathic Scoliosis.

Probably not a fit

Patients under the age of 12 or those who have not been treated for Adolescent Idiopathic Scoliosis may not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study involves a survey aimed at understanding the factors influencing treatment decisions for Adolescent Idiopathic Scoliosis (AIS). Families will provide insights on their preferences and considerations regarding treatment options such as observation, bracing, or surgery. The data collected will be utilized to develop a decision aid that enhances communication between families and healthcare providers, ultimately aiming to optimize treatment choices for AIS.

Why it matters

Potential benefit: If successful, this could empower families with better information to make informed decisions about scoliosis treatment.

How similar studies have gone: Other studies have shown success in using surveys to inform treatment decisions, making this approach both relevant and promising.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Subject (and/or parent of subject) who has previously been treated for Adolescent Idiopathic Scoliosis (AIS)

Exclusion Criteria:

* Age less than or equal to 12 years

Where it's running

  • Mayo Clinic
    Rochester, Minnesota, United States
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.