Survey on the impact of rheumatic and musculoskeletal diseases
EULAR Impact of Rheumatic and Musculoskeletal Diseases Survey
This study is collecting feedback from patients with rheumatic and musculoskeletal diseases across Europe to see how these conditions affect their daily lives and healthcare experiences.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | European Alliance of Associations in Rheumatology Academic / other |
| Locations | 1 site (Kilchberg, Canton of Zurich) |
| Trial ID | NCT06461000 on ClinicalTrials.gov |
What this trial studies
The EULAR Impact of RMDs Survey gathers firsthand information from patients about how rheumatic and musculoskeletal diseases affect their lives across Europe. Participants complete periodic questionnaires detailing their healthcare experiences and the social and occupational impacts of their conditions. This observational study aims to create a comprehensive resource that will benefit researchers, healthcare professionals, and patients by providing insights into the burden of these diseases. The data collected will help improve care and support for individuals living with rheumatic and musculoskeletal diseases.
Who should consider this trial
Good fit: Ideal candidates are adults aged 18 and older, diagnosed with at least one rheumatic or musculoskeletal disease, and residing in a EULAR country.
Not a fit: Patients who do not have access to the internet or are unable to complete online surveys may not benefit from this study.
Why it matters
Potential benefit: If successful, this survey could lead to improved understanding and management of rheumatic and musculoskeletal diseases, enhancing patient care.
How similar studies have performed: Similar observational studies have successfully provided valuable insights into the impact of chronic diseases, suggesting this approach is promising.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * 18-year-old at time of baseline survey * Living in a EULAR country at time of baseline survey * Diagnosed with at least one RMD * Valid personal e-mail address * Being able to use an internet website Exclusion Criteria: * none
Where this trial is running
Kilchberg, Canton of Zurich
- Eular — Kilchberg, Canton of Zurich, Switzerland (Recruiting)
Study contacts
- Study coordinator: Coralie Signorell, PhD
- Email: coralie.signorell@eular.org
- Phone: 0445751564
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.